That's good news... I am wondering what happend to the rest of the group... Nobody posts lately. Maybe everybody got cured and they run away... Was a lady in...

I posted a couple of times but the moderator didn't look at my posts and so they did not show. AIR-COM <matanas@...> wrote: That's good news... I...

Thank you very much!!! This gives me hope! I want a cure so bad! izzetbesi <izzetbesi@...> wrote: Hi everybody.I found this article.It is hopefull...

Yes, I thoroughly agree that it is very hopeful, thanks for sharing it with the members. I had come across this abstract a few weeks ago. Since then, I have ...

Hi. I agree that anything new is exciting. I was previously diagnosed with Polymyositis & had a week long course of Intravenous Immunoglobulin as part of...

I've been lurking on this list--too busy to post anything lately! Although granted, it's hard to define "lurking" on list with such few posts. Brad Williams...

Four years ago, when I was diagnosed with LGMD 2B, Dr. Karpati from Montreal prescribed IVIG. I had two back to back treatments, but then I moved and my new...

Amanda, That's very interesting, and thanks for telling about your experience with IVIg. Since right now we're trying to figure out if some type of trial is ...

Hi Brad, I can't remember if Dr. Karpati treated other dysferlinopathy patients with IVIg but I wouldn't be surprised if he had. He is among the world's...

Amanda thank you for sharing your experience.It is very important and im agree.I think it was ivig.I want to ask some quesions.Can you reply at here or to my...

That is correct, at the time my condition was not 100% confirmed. My biopsy showed a possible depletion of the dysferlin signal. As my file says: "In view of...