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Robert,
You may be able to use some of your past biopsy to
get a clearer diagnosis.Dr. Jerry Mendell ( phone and
address below) in Ohio is very interested in typing people with LGMD
also there are some clinical trials going on mow for some types of
LGMD if you get typed that way.
Some LGMDs can be detertmined by a blood test- others need
muscle. Cherle Wahl may still be working with him.
Departmenf of Neurology
445 Means Hall
1654 Upham Drive
Columbus, OH 43210
445 Means Hall
1654 Upham Drive
Columbus, OH 43210
Telephone: (614)
293-4036
Hope this helps,
Elizabeth
I'v been a member of the group since 2001 and look in every once in a
while to see what's going on. I'm a 55 year old male with lgmd. I
haven't been re evaluated in years to see what sub catagory I would
fit in today. I saw little need to know in the past with so little
progress being made in gene therapy clinical trials. I figure now may
a good time to get re-evaluated. I'v had 3 muscle biopsys done in my
life - Dallas, New Orleans and Los Angeles. Is a muscle biopsy still
required to distinguish between the different types of lgmd or are
blood tests available now? I haven't kept up with the latest research
and testing.
Thanks,
Robert
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