I am 22 and have had muscular dystrophy for about 8 years. I have
recently been informed that I have Dysferlin Dystrophy. I don't
really know much about it and would like to hear from anyone that
can help me with this. At prpesent the legs and feet are only
affected. My legs just go from below me and before I know it I am
on the ground. I do get very depressed at times and feel so low.

Please if anyone knows more about dysferlin, I would Appreciate it.

Irish_lass212004

--- In dysferlin@yahoogroups.com, "irish_lass212004"
<irish_lass212004@y...> wrote:
> --- In dysferlin@yahoogroups.com, "katyanihoney34"
<Kjviccary@a...>
> wrote:
> > I feel quite alone, for a while i have known there is something
> wrong
> > with me i feel weak alot of the time,ihave not been diagnosed
but
> > think that i may have a dysferlin deficiency i have no idea
what
> > medical history my familyhave but am 20 years old, and feel
like i
> > am 40/50! what should i do to find out if i am one of these
people,
> > my upper body is thin/gaunt my leg muscles are big in the thighs
> but
> > not strong,
> > tips/advice extreamly welcome!
> > Katie
> > Kjviccary@a...