hi katie,
sorry to hear that you're feeling so lonely. i'm 26
and was recently diagnosed with a rare form of
muscular dystrohpy called miyoshi myopathy. the
initial test that they did was very easy. my doctor
just took some blood and tested my muscle enzyme
level. from there they might be able to reccomend
which way you go. my symptoms are just in my lower
legs right now. small calf muscles that are getting
smaller slowly. every case is different, so do
whatever you feel, but feel free to write if you want
to chat about things. i know what it feels like to be
lonely with this. my e-mail is b5sense@.... take
care and you're not alone.
bryan nickell


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