--- In dysferlin@yahoogroups.com, "katyanihoney34" <Kjviccary@a...>
wrote:
> I feel quite alone, for a while i have known there is something
wrong
> with me i feel weak alot of the time,ihave not been diagnosed but
> think that i may have a dysferlin deficiency i have no idea what
> medical history my familyhave but am 20 years old, and feel like i
> am 40/50! what should i do to find out if i am one of these people,
> my upper body is thin/gaunt my leg muscles are big in the thighs
but
> not strong,
> tips/advice extreamly welcome!
> Katie
> Kjviccary@a...