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dysferlin · Dysferlin Deficiency
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Hi Donna   Message List  
Reply | Forward Message #123 of 592 |
Re: [dysferlin] Hi Donna

Hi Elizabeth,\
Thank u for callin me and giving me that info. I
will keep in Contact with u. I think we could be
great support foreach other cause not a lot of people
understand what we go though every day of out life. I
talk to my other half and if they want a biospys I
will let them. Sorry I have never been a great
speller. I will let u kow how my Appt. goes on Wed.
Thank for those links. Yes I think one day they will
have a cure it just going to take time.

Thanks,
Donna

--- elizarah@... wrote:
> Hi Donna,
> It was nice talking with you last night.l I hope
> we'll stay in touch and
> support each other through this. You have a great
> attitude!
> As I said my long distance is "free" so I don't mind
> calling anytime
> you want to talk.
> Just send me an email or call and I'll call you
> back.
> Below are some links relating to the Myostatin.
> As you'll see its all very experimental, but
> hopefully there
> are more good things they aren't saying at this
> point!
> Good luck on wednesday!
> ~elizabeth~
>
>
http://www.hopkinsmedicine.org/Press_releases/2004/06_23_04.html
> http://www.aegis.com/news/ct/2004/CT040611.html
>
http://www.thinkmuscle.com/articles/volk/myostatin.htm
>
>
>

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Sun May 29, 2005 10:54 pm

dkidder79
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Message #123 of 592 |
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Donna, I am 50 , female and have LGMD2B. Maybe you know that there are many kinds of Limb Girdle MD. the web address that is conducting the clinical...
cadiame
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May 27, 2005
10:05 pm

Yes I have 2b and I am just like u I can stil walk but can't do stairs with out a railing. I have a hard time getting up from sitting postion. Yeah I going...
Donna Kidder
dkidder79
Offline Send Email
May 27, 2005
10:52 pm

Hi Donna, It was nice talking with you last night.l I hope we'll stay in touch and support each other through this. You have a great attitude! As I said my...
elizarah@...
cadiame
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May 29, 2005
7:14 pm

Hi Elizabeth,\ Thank u for callin me and giving me that info. I will keep in Contact with u. I think we could be great support foreach other cause not a lot...
Donna Kidder
dkidder79
Offline Send Email
May 30, 2005
12:16 am
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