Yes I have 2b and I am just like u I can stil walk but
can't do stairs with out a railing. I have a hard
time getting up from sitting postion. Yeah I going to
the one in Ohio cause it right by my house. My
brother not old enough that when my mom told them
about me and they would like me to do it. So i find
out wed. I just wish i knew wat it all intails.

Thanks
Donna
--- cadiame <elizarah@...> wrote:
> Donna,
> I am 50 , female and have LGMD2B. Maybe you know
> that
> there are many kinds of Limb Girdle MD. the web
> address
> that is conducting the clinical trialsfor LGMD2B is:
>
>
http://www.clinicaltrials.gov/ct/show/NCT00104078?order=1
>
> The trial name is MYO 29
> They are still recruiting patients at certain
> hospitals around
> the country.
> As your symptoms/progression sound you may be
> eligible
> for the study if you have the 2B. I am entered in
> the study
> out of Boston.
> Please feel free to contact me if you wish to
> correspond.
> I am still walking, have tgrouble getting out of a
> chair and
> use a walking stick for balance- stairs I can do if
> there is
> a raling to pull myself up with.
> Whose bright idea were stairs anyway ?????
> ~elizabeth~
>
>
>
>
>
>

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