Donna,
I am 50 , female and have LGMD2B. Maybe you know that
there are many kinds of Limb Girdle MD. the web address
that is conducting the clinical trialsfor LGMD2B is:

http://www.clinicaltrials.gov/ct/show/NCT00104078?order=1

The trial name is MYO 29
They are still recruiting patients at certain hospitals around
the country.
As your symptoms/progression sound you may be eligible
for the study if you have the 2B. I am entered in the study
out of Boston.
Please feel free to contact me if you wish to correspond.
I am still walking, have tgrouble getting out of a chair and
use a walking stick for balance- stairs I can do if there is
a raling to pull myself up with.
Whose bright idea were stairs anyway ?????
~elizabeth~