Hi my name is Donna and I am 25 yrs old and have Limb girdle. I have
known since I was 16yrs old. I still can walk but have a lot of
problems gettin up on my own from a sitting postion. I just thought
it would be nice to have people to talk to that understand what is
going on and have the same thing I have. I have also heard there was
a clinical trial going on and was woundering if anyone know about it
and what they do.Also if anyone knew what the requirements are to be a
part of it.
Thanks,
Donna