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dysferlin · Dysferlin Deficiency
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Reply | Forward Message #119 of 592 |
Hi my name is Donna and I am 25 yrs old and have Limb girdle. I have
known since I was 16yrs old. I still can walk but have a lot of
problems gettin up on my own from a sitting postion. I just thought
it would be nice to have people to talk to that understand what is
going on and have the same thing I have. I have also heard there was
a clinical trial going on and was woundering if anyone know about it
and what they do.Also if anyone knew what the requirements are to be a
part of it.

Thanks,
Donna







Tue May 24, 2005 3:51 pm

dkidder79
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Message #119 of 592 |
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Hi my name is Donna and I am 25 yrs old and have Limb girdle. I have known since I was 16yrs old. I still can walk but have a lot of problems gettin up on my...
Donna
dkidder79
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May 24, 2005
10:50 pm
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