Hi, my name is Ivetta and I also have a dysferlinopathy.
I'm 20 years old and my brother is 22 years old(he also has a
diagnosis of dysferlinopathy). We are from Israel but we were burn in
Azerbayjan (USSR). I have red that you a 40 years old and i wanted to
ask you what do you feel? How this disease limits your life, do you
work?
We are very scared because we don't know what to expect and I hope
that your answers will help us.
Thanks and sorry for my English.

Ivetta