We are brother & sister(22 and 20 years old) from Israel(originaly
from Azerbayjan, one out 15 republics of USSR). We are both were
diagnosed with dysferlenopathy(still don't know wich kind, Mioshi or
L-G).
We don't know what to expect from this disease. We want to ask some
questions, from those people that have the progressive way of this
disease:
1) How it limits your daily life?
2) What are the expressions of this disease?
3) How do you contestant with those problems ?

Thanks for all,
Nisan & Ivetta.