In reply to Bryan

I was about 25/26 when I was diagnosed with MIYOSHI. (I'm now 35) I was
also quite sporty - used to play squash & badminton. I know how it feels to
suddenly have your life changed but you have to make the best of things and
carry on. I'm a very determined person and I will not let this disease ruin
my life!! I'm married with 2 young children and I still work part time.
Please ask anything you want to know about my diagnosis etc.
Keep smiling
Suzanne (PS I'm from England , where are you?)
----- Original Message -----
From: b5sense <b5sense@...>
To: <dysferlin@yahoogroups.com>
Sent: Tuesday, May 11, 2004 4:50 PM
Subject: [dysferlin] an introduction


> hi everybody,
> my name is bryan. i'm 24 and was diagnosed with miyoshi myopathy
> earlier this year. still trying to figure out what it all means. i
> feel pretty alone. i've been an athlete most of my life, and now it's
> hard for me to keep up, or even walk up a flight of stairs. i hope i
> can meet some people that might have similar experiences. it would be
> nice to talk to somebody,
> thanks
> bryan
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