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dysferlin · Dysferlin Deficiency
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an introduction   Message List  
Reply | Forward Message #110 of 592 |
Re: an introduction

Hi Bryan,
I'm also 24. I was diagnosed with Limb-girdle MD when I was 7. What
I can tell you is that having MD is a constant adjustment, I guess
for me anyway. My MD is a slow progression type, but its hard to lose
your ability to do things (eg going up steps)I can imagine that this
new diagnosis has thrown you a bit. Especially when you have been so
active in past. To be honest I am not familiar with what you have
but I do know if you stay as active as possible it will be to your
benefit just don't over do it. -changing subject- I haven't been
able to go up a flight of stairs in years, I use a power chair at
this stage in my life. Well I gotta run but I look forward to
talking with you. Take care.
Nesa






Wed May 12, 2004 2:24 am

nena_v01
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Message #110 of 592 |
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hi everybody, my name is bryan. i'm 24 and was diagnosed with miyoshi myopathy earlier this year. still trying to figure out what it all means. i feel pretty...
b5sense
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May 11, 2004
10:23 pm

Hi Bryan, I'm also 24. I was diagnosed with Limb-girdle MD when I was 7. What I can tell you is that having MD is a constant adjustment, I guess for me...
nena_v01
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May 12, 2004
2:56 am

In reply to Bryan I was about 25/26 when I was diagnosed with MIYOSHI. (I'm now 35) I was also quite sporty - used to play squash & badminton. I know how it...
Suzanne Croft
craftycroftyuk
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May 13, 2004
11:17 pm
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