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Reply | Forward Message #109 of 592 |
hi everybody,
my name is bryan. i'm 24 and was diagnosed with miyoshi myopathy
earlier this year. still trying to figure out what it all means. i
feel pretty alone. i've been an athlete most of my life, and now it's
hard for me to keep up, or even walk up a flight of stairs. i hope i
can meet some people that might have similar experiences. it would be
nice to talk to somebody,
thanks
bryan





Tue May 11, 2004 3:50 pm

b5sense
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Message #109 of 592 |
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hi everybody, my name is bryan. i'm 24 and was diagnosed with miyoshi myopathy earlier this year. still trying to figure out what it all means. i feel pretty...
b5sense
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May 11, 2004
10:23 pm

Hi Bryan, I'm also 24. I was diagnosed with Limb-girdle MD when I was 7. What I can tell you is that having MD is a constant adjustment, I guess for me...
nena_v01
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May 12, 2004
2:56 am

In reply to Bryan I was about 25/26 when I was diagnosed with MIYOSHI. (I'm now 35) I was also quite sporty - used to play squash & badminton. I know how it...
Suzanne Croft
craftycroftyuk
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May 13, 2004
11:17 pm
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