dysferlin : Message: Re: [dysferlin] new to the concept

dysferlin · Dysferlin Deficiency

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Message #107 of 592 |

Re: [dysferlin] new to the concept

You should consult a neurologist. Or better yet, contact your local Muscular Dystrophy Association to locate an MDA clinic in your area.

Wishing you Love, Peace & Happiness
Kendra Carter-Hurte

Fri May 7, 2004 6:16 pm

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Message #107 of 592 |

Expand Messages	Author	Sort by Date
I feel quite alone, for a while i have known there is something wrong with me i feel weak alot of the time,ihave not been diagnosed but think that i may have a...	katyanihoney34	May 7, 2004 12:00 am
You should consult a neurologist. Or better yet, contact your local Muscular Dystrophy Association to locate an MDA clinic in your area. Wishing you Love,...	khurte@... khurte	May 7, 2004 10:08 pm
... wrong ... but...	irish_lass212004 irish_lass21...	Jun 30, 2005 1:52 am
hi katie, sorry to hear that you're feeling so lonely. i'm 26 and was recently diagnosed with a rare form of muscular dystrohpy called miyoshi myopathy. the ...	Bryan Nickell b5sense	Jun 30, 2005 4:18 am
I am 22 and have had muscular dystrophy for about 8 years. I have recently been informed that I have Dysferlin Dystrophy. I don't really know much about it...	irish_lass212004 irish_lass21...	Jul 7, 2005 5:48 am
Hi Katie I'm 36 now & have had symptoms since I was in my early twenties. Have been diagnosed with Miyoshi Distal Myopathy for about 7 years now. My condition...	Suzanne Croft craftycroftyuk	Jul 7, 2005 5:49 am

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