I feel quite alone, for a while i have known there is something wrong
with me i feel weak alot of the time,ihave not been diagnosed but
think that i may have a dysferlin deficiency i have no idea what
medical history my familyhave but am 20 years old, and feel like i
am 40/50! what should i do to find out if i am one of these people,
my upper body is thin/gaunt my leg muscles are big in the thighs but
not strong,
tips/advice extreamly welcome!
Katie
Kjviccary@...