Hi
I'm Suzanne, from England, & I've been diagnosed with Miyoshi Distal
Myopathy. I have a very suppotive husband, a son of four years old and a
one year old daughter. Life is hectic but I manage very well. I can get
them to school, put them to bed, look after the house and I work part-time
too. The main thing I cannot do is pick them up whilst standing and carry
them. There are always ways around this - like crawling with them and
transferring the baby in a pushchair. My four year old is a happy, loving,
considerate little boy and I don't feel he's missed out on anything in life.
He's certainly made my life richer!!

----- Original Message -----
From: inquisitivemind3 <inquisitivemind3@...>
To: <dysferlin@yahoogroups.com>
Sent: Sunday, September 28, 2003 6:33 PM
Subject: [dysferlin] Thank you for your messages


> Hello,
>
> I just wanted to thank everybody who responded to my email posted in
> August. I may have been very slow to reply, but I greatly
> appreciated everybody's messages.
>
> Mathew, my fellow-Ontarian...How are you? Are you still lifting
> weights? I think it's great that you can still do that. I'm
> curious: Do you see a doctor on a regular basis? Since I've been
> diagnosed, it seems I've been forgotten. I haven't had any guidance
> at all and I'm wondering if anybody else gets regular support,
> advice, updates...anything?
> Aman, it's great that you're attending medical school.
> Congratulations! I really hope you're able to conduct some
> research, or at least, keep us informed on what's happening. Good
> luck in your studies. How are you coping with life on campus?
> Fret, I was very interested to find out that you have children, and
> a third one on the way!! That's wonderful. I was curious to know
> what your family life is like with little children. I'm also
> wondering if there are any women on this site who have had children
> and what their experiences were.
> Kendra, thank you for your welcoming message. How have you been?
>
> Amanda
>
>
>
>
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>
>