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dysferlin · Dysferlin Deficiency

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Dysferlin deficiency causes two forms of muscular dystrophy: Miyoshi distal myopathy and Limb-Girdle Muscular dystrophy type 2B. The dysferlin gene and protein were discovered in 1998; many research groups around the world are currently studying this medical condition. This group is intended to give patients, families, researchers, and others the opportunity to share information, experiences, and advice.

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Re: swollen legs and discoloration
Hi Frnds, Excessive exercise or stretching of r weak muscles is not recommended for MD's.......I think, d main cause of rapid progression of ma disability
Posted - Sun Mar 18, 2012 4:29 am
Bipin Panickar
bipin.panickar
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Re: swollen legs and discoloration
Hi there I have tried bike riding on a normal bike as well as on a exercise bike. My legs would always be and feel quite swollen afterwards. I also get a
Posted - Sun Mar 18, 2012 3:36 am
Melissa Oudshoorn
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swollen legs and discoloration
I tried to go bike riding and now I am in extreme pain and can barely walk. I have been using a cane and a walker. The bike riding was a rather absurd thing
Posted - Sun Mar 18, 2012 2:56 am
agathalouise1969
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dysferlin absent
I just am having difficulties comprehending how, if I am dysferlin-absent, I was able to go as long as I have functioning fairly normally until very recently.
Posted - Fri Mar 16, 2012 12:36 am
agathalouise1969
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Re: Enquiry about pains in the knee
... My knee pain started in my early teens. Often my knees pop out, which causes me to fall. It is very painful. Doctors have always seemed confused by this
Posted - Fri Mar 16, 2012 12:31 am
agathalouise1969
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2012 4 10 23
2011 17 5 7 3 5 10 8 11 2 5
2010 11 22 24 14 4 5 14 39 3 4
2009 57 16 1 26 5 17 10 23 50 3
2008 4 3 55 13 12 9 16 16
2007 1 8 3 7 3 1
2006 34 23 20 9 8 7
2005 3 5 2 10
2004 3 6 1 2 1
2003 4 2 2 1 5 1 2
2002 6 13 18 11 3 3 6 2 3
2001 4 10 2 1 2 1
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