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dysferlin · Dysferlin Deficiency

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Description

Dysferlin deficiency causes two forms of muscular dystrophy: Miyoshi distal myopathy and Limb-Girdle Muscular dystrophy type 2B. The dysferlin gene and protein were discovered in 1998; many research groups around the world are currently studying this medical condition. This group is intended to give patients, families, researchers, and others the opportunity to share information, experiences, and advice.

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Re: Stem cell treatment in India - Dysferelenopathy
Hi Subhash, Thanks for giving me a call. As I discussed with you on phone, the doctors at AIIMS didn't advise me to go for Stem Cell therapy (8 months back).
Posted - Tue Jun 30, 2009 9:33 am
Keertee Kumar Saxena
kkstays
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New poll for dysferlin
Enter your vote today! A new poll has been created for the dysferlin group: How has your dysferlinopathy progressed? o Myoshi: Steady linear progression o
Posted - Tue Jun 30, 2009 7:37 am
dysferlin@yahoogroups...
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Re: Knee pain
Thanks for your message Kimberly. It's really good to know that you are still walking with Myoshi. I'm 31 now and seem to be progressing/degenerating
Posted - Tue Jun 30, 2009 7:19 am
Rebecca Read
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Stem cell treatment in India - Dysferelenopathy
Hi, This is Subhash, my wife has diagnosed with Dysferelinopathy. I have heard that some stem cell treatment is giving to the MD patients in India. Doctors in
Posted - Tue Jun 30, 2009 3:12 am
subhash_met
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Re: Knee pain
I also have miyoshi myopathy. I am 57 and for the last 28 years I have been walking with knees hyperextended to keep my balance. I have been having pretty bad
Posted - Tue Jun 30, 2009 3:11 am
Kimberly Niehaus
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 57 16 1 26 5 17
2008 4 3 55 13 12 9 16 16
2007 1 8 3 7 3 1
2006 34 23 20 9 8 7
2005 3 5 2 10
2004 3 6 1 2 1
2003 4 2 2 1 5 1 2
2002 6 13 18 11 3 3 6 2 3
2001 4 10 2 1 2 1
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