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duanes · Duane's Retraction Syndrome
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Messages 9985 - 10014 of 13028   Oldest  |  < Older  |  Newer >  |  Newest
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9985
We have a family of people with Duanes and I have to say the Duanes hasnt been a problem! they play sport, are extremely bright, can drive (those who are old...
petshell
petshells
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Jul 1, 2006
8:50 am
9986
Hi Cheryl, My son is now 15 (Type I, left eye) and has passed most of the teasing now that he is in high-school. (The teasing about Duanes, anyway! Boys seem...
Amy Rose
azrphr@...
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Jul 1, 2006
2:02 pm
9987
I need everyone's help if you are willing and able. I've written a letter to President Bush, Vice President Cheney, First Lady Bush, two Virginia...
arielthorne77
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Jul 1, 2006
3:19 pm
9988
It seems half of the people with duane's were teased and had a very hard time, and then there is the other half who said no one noticed. I'm sort of confused...
Julie Stevens
jmb_10470
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Jul 1, 2006
4:02 pm
9989
I think it has alot to do with how the child decides to handle situations. If they are matter of factly about teasing, then the kids will stop teasing. Or if...
alisonslp
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Jul 1, 2006
4:41 pm
9990
Whether or not a child is teased is going to depend on a number of factors: the severity of the duane's, the amount of the head turn, how noticeable it is, and...
Liane Herbst
lfran84
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Jul 1, 2006
4:52 pm
9991
Hi, Cheryl I'm twenty-five and have type III DRS. I had a slight head tilt but hd it corrected at twenty. That wasn't at all noticable, but I had it done...
jennifergordonad1
jennifergord...
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Jul 1, 2006
5:22 pm
9992
I agree, After about seven years of life, my son doesn't really "know" or care that he has duanes. He did a science report on his condition this past school...
Dave or Sueann Emerson
hoosierlonghorn
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Jul 1, 2006
5:47 pm
9993
Liane my son refuses to wear his glasses in school as it increases the ridiculing he gets. We are matter of fact about Duanes in our family, especially as so...
petshell
petshells
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Jul 1, 2006
9:39 pm
9994
Julie wrote that she was concerned about the teasing. Believe me that was a very big worry for me, since I had grown up with an hemangeoma (a strawberry...
Amy Rose
azrphr@...
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Jul 1, 2006
10:29 pm
9995
I'm the Mom and the one with the head turn... it is sometimes difficult when people think I'm NOT watching the movie or talking directly to them.. otherwise a...
Patti Boullie
pboullie
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Jul 1, 2006
10:56 pm
9996
I, also, would like to console the new members, who are tearful about their child's diagnosis with Duane's. I'm 38 years old (female) and I have type 1...
Gina Sifford
gmsifford2000
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Jul 1, 2006
11:11 pm
9997
thank you gina..... abbie rich www.sewdragondesigns.com...
gomomgomomgomom@...
scifig
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Jul 2, 2006
12:10 am
9998
In a message dated 7/1/2006 3:30:30 P.M. Pacific Daylight Time, duanes@yahoogroups.com writes: I personally got teased a lot more for wearing glasses than for...
AnnWRawks@...
annwrawks
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Jul 2, 2006
12:21 am
9999
In a message dated 7/1/2006 3:30:30 P.M. Pacific Daylight Time, duanes@yahoogroups.com writes: It seems half of the people with duane's were teased and had a...
AnnWRawks@...
annwrawks
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Jul 2, 2006
12:26 am
10000
Shelley -- I am really sorry Alex is having such a bad time. I hope the surgery will help immensely. I agree -- there are times you just can't do anything, if...
Liane Herbst
lfran84
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Jul 2, 2006
3:01 am
10001
Hi Julie Tasha had her 1st VRT surgery over 2yrs ago here in Calgary, with Dr. Astle. She had a vertical deviation, and down shoot, plus a head tilt when...
butksniff
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Jul 2, 2006
6:28 pm
10002
Hi Lisa, Thanks for the update. So, what I hear is that Tasha's first surgery didn't go all that great with Dr. R, but then he appeared to fix it with the...
Julie Stevens
jmb_10470
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Jul 2, 2006
6:58 pm
10003
Hi Julie Just to let you know Dr. Rosenbaum did not do the vertical deviation. This was done after the 1st surgery here in Canada. Also when Dr. R. see's a...
butksniff
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Jul 3, 2006
5:25 am
10004
... Go with the plane because - it is a lot quicker - even if the child screamed, it wouldn't be noticed by a lot of people, these airplanes are extremely...
Christoph J. Gartmann
riromamei
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Jul 3, 2006
6:14 am
10005
Cheryl, I complained to my daughter's pediatricians (she had 3 because of us moving) and they all said "oh, it's nothing. She just has a wide nasal bridge."...
Margaret Scott
mischief1172003
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Jul 3, 2006
5:04 pm
10006
-Hi Cheryl, I had a very similar experience with our ped. optho. If you don't mind me asking where do you live? We are in Central Va. After finding this...
randlwisniewski
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Jul 4, 2006
2:25 am
10007
My daughter has a severe case of Brown Syndrome in her left eye. I have done research but there isn't very much on the net that I can find so I called some...
reckerdt2002
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Jul 4, 2006
5:48 pm
10008
Thank you EVERYONE for your comments. I live in Lawrence, KS, not far from KC. I am getting a second opinion from Children's Mercy on July 13th. I appreciate...
Cheryl
cnorwoodus
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Jul 5, 2006
2:05 pm
10009
BTW, I just posted pictures of Janae in the photo album! Proud mama :) ... on ... don't ... to ... getting ... in ... me ... there ... of...
Cheryl
cnorwoodus
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Jul 5, 2006
6:51 pm
10010
hi, Has anyone ever heard of any form of funding that schools can appply for if they are educating a child who has duanes?? I have tried Visionaid in Bolton...
MICHELLE WELLS
lollypopsmum
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Jul 5, 2006
8:14 pm
10011
i guess if the child has an educational statement which identifies a specific tool / aid which is required to support the child due to their visual problems...
petshell
petshells
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Jul 5, 2006
8:49 pm
10012
Janae is so beautiful -definite right to be proud Shells x...
petshell
petshells
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Jul 5, 2006
8:59 pm
10013
THank you for your nice post. ... most ... embarrassed ... with ... those ... any ... will ... are ... but ... to ... more...
Cheryl
cnorwoodus
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Jul 5, 2006
9:44 pm
10014
... [...] I couldn't have expressed it better, I wholeheartedly agree. ... Indeed, I had been teased because of my glasses and because of patching but only...
Christoph J. Gartmann
riromamei
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Jul 6, 2006
6:19 am
Messages 9985 - 10014 of 13028   Oldest  |  < Older  |  Newer >  |  Newest
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