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duanes · Duane's Retraction Syndrome

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9985 petshell
petshells Offline Send Email
Jul 1, 2006
8:50 am
We have a family of people with Duanes and I have to say the Duanes hasnt been a problem! they play sport, are extremely bright, can drive (those who are old...
9986 Amy Rose
azrphr@... Send Email
Jul 1, 2006
2:02 pm
Hi Cheryl, My son is now 15 (Type I, left eye) and has passed most of the teasing now that he is in high-school. (The teasing about Duanes, anyway! Boys seem...
9987 arielthorne77 Offline Send Email Jul 1, 2006
3:19 pm
I need everyone's help if you are willing and able. I've written a letter to President Bush, Vice President Cheney, First Lady Bush, two Virginia...
9988 Julie Stevens
jmb_10470 Offline Send Email
Jul 1, 2006
4:02 pm
It seems half of the people with duane's were teased and had a very hard time, and then there is the other half who said no one noticed. I'm sort of confused...
9989 alisonslp Offline Send Email Jul 1, 2006
4:41 pm
I think it has alot to do with how the child decides to handle situations. If they are matter of factly about teasing, then the kids will stop teasing. Or if...
9990 Liane Herbst
lfran84 Offline Send Email
Jul 1, 2006
4:52 pm
Whether or not a child is teased is going to depend on a number of factors: the severity of the duane's, the amount of the head turn, how noticeable it is, and...
9991 jennifergordonad1
jennifergord... Offline Send Email
Jul 1, 2006
5:22 pm
Hi, Cheryl I'm twenty-five and have type III DRS. I had a slight head tilt but hd it corrected at twenty. That wasn't at all noticable, but I had it done...
9992 Dave or Sueann Emerson
hoosierlonghorn Offline Send Email
Jul 1, 2006
5:47 pm
I agree, After about seven years of life, my son doesn't really "know" or care that he has duanes. He did a science report on his condition this past school...
9993 petshell
petshells Offline Send Email
Jul 1, 2006
9:39 pm
Liane my son refuses to wear his glasses in school as it increases the ridiculing he gets. We are matter of fact about Duanes in our family, especially as so...
9994 Amy Rose
azrphr@... Send Email
Jul 1, 2006
10:29 pm
Julie wrote that she was concerned about the teasing. Believe me that was a very big worry for me, since I had grown up with an hemangeoma (a strawberry...
9995 Patti Boullie
pboullie Offline Send Email
Jul 1, 2006
10:56 pm
I'm the Mom and the one with the head turn... it is sometimes difficult when people think I'm NOT watching the movie or talking directly to them.. otherwise a...
9996 Gina Sifford
gmsifford2000 Offline Send Email
Jul 1, 2006
11:11 pm
I, also, would like to console the new members, who are tearful about their child's diagnosis with Duane's. I'm 38 years old (female) and I have type 1...
9997 gomomgomomgomom@...
scifig Offline Send Email
Jul 2, 2006
12:10 am
thank you gina..... abbie rich www.sewdragondesigns.com...
9998 AnnWRawks@...
annwrawks Offline Send Email
Jul 2, 2006
12:21 am
In a message dated 7/1/2006 3:30:30 P.M. Pacific Daylight Time, duanes@yahoogroups.com writes: I personally got teased a lot more for wearing glasses than for...
9999 AnnWRawks@...
annwrawks Offline Send Email
Jul 2, 2006
12:26 am
In a message dated 7/1/2006 3:30:30 P.M. Pacific Daylight Time, duanes@yahoogroups.com writes: It seems half of the people with duane's were teased and had a...
10000 Liane Herbst
lfran84 Offline Send Email
Jul 2, 2006
3:01 am
Shelley -- I am really sorry Alex is having such a bad time. I hope the surgery will help immensely. I agree -- there are times you just can't do anything, if...
10001 butksniff Offline Send Email Jul 2, 2006
6:28 pm
Hi Julie Tasha had her 1st VRT surgery over 2yrs ago here in Calgary, with Dr. Astle. She had a vertical deviation, and down shoot, plus a head tilt when...
10002 Julie Stevens
jmb_10470 Offline Send Email
Jul 2, 2006
6:58 pm
Hi Lisa, Thanks for the update. So, what I hear is that Tasha's first surgery didn't go all that great with Dr. R, but then he appeared to fix it with the...
10003 butksniff Offline Send Email Jul 3, 2006
5:25 am
Hi Julie Just to let you know Dr. Rosenbaum did not do the vertical deviation. This was done after the 1st surgery here in Canada. Also when Dr. R. see's a...
10004 Christoph J. Gartmann
riromamei Offline Send Email
Jul 3, 2006
6:14 am
... Go with the plane because - it is a lot quicker - even if the child screamed, it wouldn't be noticed by a lot of people, these airplanes are extremely...
10005 Margaret Scott
mischief1172003 Offline Send Email
Jul 3, 2006
5:04 pm
Cheryl, I complained to my daughter's pediatricians (she had 3 because of us moving) and they all said "oh, it's nothing. She just has a wide nasal bridge."...
10006 randlwisniewski Offline Send Email Jul 4, 2006
2:25 am
-Hi Cheryl, I had a very similar experience with our ped. optho. If you don't mind me asking where do you live? We are in Central Va. After finding this...
10007 reckerdt2002 Offline Send Email Jul 4, 2006
5:48 pm
My daughter has a severe case of Brown Syndrome in her left eye. I have done research but there isn't very much on the net that I can find so I called some...
10010 MICHELLE WELLS
lollypopsmum Offline Send Email
Jul 5, 2006
8:14 pm
hi, Has anyone ever heard of any form of funding that schools can appply for if they are educating a child who has duanes?? I have tried Visionaid in Bolton...
10011 petshell
petshells Offline Send Email
Jul 5, 2006
8:49 pm
i guess if the child has an educational statement which identifies a specific tool / aid which is required to support the child due to their visual problems...
10012 petshell
petshells Offline Send Email
Jul 5, 2006
8:59 pm
Janae is so beautiful -definite right to be proud Shells x...
10014 Christoph J. Gartmann
riromamei Offline Send Email
Jul 6, 2006
6:19 am
... [...] I couldn't have expressed it better, I wholeheartedly agree. ... Indeed, I had been teased because of my glasses and because of patching but only...
10015 jma1721 Offline Send Email Jul 6, 2006
11:05 am
... minor, it is not easy to detect from the photograph. Don't despair over the diagnosis of duanes, things can be done if necessary. Read all the back posts...
10016 MICHELLE WELLS
lollypopsmum Offline Send Email
Jul 6, 2006
5:48 pm
hi Shelley, Lauren, like Alex doesnt need anything specific other than to sit straight on in the classroom. we are currently moving house and the schools in...
10017 dmrred Offline Send Email Jul 7, 2006
5:53 pm
Near reflex substituting for acquired horizontal gaze palsy: a case report. Kohno T, Oohira A, Hori S. Department of Ophthalmology, Tokyo Women's Medical...
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