I just found this group last night and would like to find more out about the condition. About a year ago I took my son to a standard checkup appointment at his...
Welcome! With Duane's, a person can sometimes move the eye partway to the side, but can't move it all they way no matter how hard s/he tries. If your son can...
Thank you for the response. To answer a few questions my son is 4 and we live in the San Francisco Bay Area (Union City). The Duane's diagnosis seemed rather...
Melissa, I don't claim to know much about anything LOL... but, the doctor who diagnosed your son with Duane's is an absolute quack! Duane's is a birth defect,...
We had Kaiser when Kim was diagnosed (they missed it for 3 years) then we left and then returned and they did not care about the Duanes at all. It has been...
A few questions that might help: Did you have continuous coverage - did you have a lapse in insurance? What state do you live in? Did they totally deny his...
People here are giving you good advice I just thought I'd give you that email to Dr. Rosenbaums that they suggested. This is from a previous post and they...
We had a lapse in coverage starting March of this year. I was unable to afford the Cobra rates (over $900 a month) and my employer just started offering a $500...
... months ago with a history of high blood pressure and my daughter has a history of Asthma but we were both approved. My son has zero medical issues other...
Definitely get a copy of the explanation of denial. They have to provide it to you. You may find that they miscoded the duane's, mistakenly giving him a more...
My daughter is getting ready to begin Kindergarten in August...She has Type II Duane's...Should I ask for her to have an IEP or is that unnecessary?...
Our son has Type II. Aside from letting his teacher know (especially in P.E., in case he has a "blind side"), he has needed not accommodation. In fact, I'm...
Hi melissa My daughter was diagonised with duanes when she was 5 months old. Then we decided to improve her eye condition. Thanks to this group. That time we...
My son has Type III and is also starting kindergarten next year. I thought it was better to make the school aware in case it becomes an issue. I met with...
As long as your dd is developing at a typical rate, there's no need for an IEP. I would, however, let her teacher and important personnel (like the nurse and...
My 9 year old son has Duane's Type I and I always make sure and tell his teacher's that he has it so they can sit him appropriately in class. The better ...
... Is there any hard evidence of this? I've never seen any research on this. My son spends the majority of his waking hours reading and he's never had any...
Barbara, Thanks for your message. I was worried about future reading problems based on posts I read on this site. I was a little hesitant about bringing it...
Isabella, who is now 11 months old, has been diagnosed with right duane. Overall her sight appears normal except on certain occasions when looking right her...
I am 27 years old and I have Duane's type I. As a small child my mother took me to many doctors and it took 18 years to have my condition diagnosed. I had ...
Hi Dorena, My daughter Carly, is 3 y.o. and has Type 1 in her left eye. She was diagnosed by the head of pediatric opthalmology at a large Children's hospital...
Hi Dorena....I have basically the same story as Aileen.... SO you must see Dr Rosenbaum or an informed PO in your area....My daughters results were excellent...
Just wanted to put in my 2 cents that although some people with Duane's have reported problems with reading, I have never had a problem -- no headaches, etc....
Hi, I am new to the group, but not new to Duanes. My son, Emilio was diagnosed with Duane's at about 6 months. He has type I affecting has right eye. It's...
Dear Aileen, Thank you for sharing about your daughter. We live in the S.F. Bay area. Isabella was diagnosed by an ophthalmologist with the Oakland Children's...
I've read all of the time all of my life. I never had any trouble until graduate school, when I started getting headaches on all sort of tasks that require...
Welcome to the group. I have a 4.5 yr old daughter with mainly type 1 duanes in the left eye. She apparently has a very mild type 2 as well (which actually...
Hi Dorena Your daughter Isabella sounds like my daughter, with the exception that my daughter's is the left eye. Mine was also diagnosed at 11 months. We...
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