Hi, I'm Donna, mother to Katie, age 6, Duane 1, left eye. My Katie was also diagnosed at 11 months. Her Duane's is in the left eye and is not able to move...
By that, I mean somone well know for this...I thought I remember someone mentioning this a year or so ago. We have just moved to North carolina and my dd's new...
I know that Dr. R at UCLA is the undisputed expert in surgery for Duanes' Syndrome. I'm curious about what people's experience has been around getting...
Hi Rob As a longtime sufferer of Duanes Type 1 myself, I can only say the condition has not worsened in my case over time, nor have I ever suffered headaches...
Hi It may well have been that because I was born in 1940 and had operations then that the specialist did not know enough to have developed my binocular vision...
I hope that I am not overstepping my bounds, I have started another group for parent's of children with Duane's Syndrome, and Adults with Duane's Syndrome that...
Wow just reading this amazes me my son is almost four he had surgery which was very successful for Daunes syndrome type II left eye back in september 2004 - ...
Hi. I'm an adult with Duane's (almost 42) and have a 3.5 y/o son with bilateral Duane's, too. I have been absolutely fine all my life, with the exception of a...
I am so happy to have come across this discussion group. So many of my initial questions have been answered just by reading through the posts. Anyway, it's...
HELLO, My son alex has type 2 Left eye and is now 8. He is very smart but emotionally he is a mess. lol. He doesn't relate well to other children and prefers...
Hi I have Duane;s type 1 in my left eye and had three muscle corrective eye operations as a child in the 1940's. I was told nothing else could be done as over...
Someone posted recently that they use one eye for reading and the other for distance. I was doing that for years, and I think that really made my headturn...
... This is an excellent question. Obviously I cannot answer it re Dr R in the USA but I would like to post a reply to it in more general terms and in relation...
Dear Liane, You may have said before, but why is it that you have not had VTR surgery on your own eyes? Especially since your son's surgery was so successful?...
Hi Sara. I'm both an adult with Duane's (almost 42) and the mother of 2 boys, one with and one without Duanes. My Duanes has affected me hardly at all in my ...
Hi everyone! I haven't posted in the group for years, so I am introducing our family first. I am a mother of two daughters. Our older daughter, Sini, was...
Could someone tell me the number of the post with the question compilation? I can't find it and I want to print it out. Thanks a bunch everyone! Catherine...
Hi Jan, Chad, Sue and Barbara, Thank you all so much for sharing your wise words, helpful thoughts and experiences!!! I am really touched reading them, and...
hi ciara and family from belfast.im louis/s mum michelle from somerset,you will see my concerns for louis on the messages,after taking him to hospital on...
Michele, I'm not sure why a urine sample would be required, but I remember having to give samples as well. I have Type I in both eyes, and I've had 3...
I'd ask your pediatrician for a referral to a pediatric ophthalmologist, explaining that you have an eye movement disorder that can be hereditary. I know that...
Hi all, My daughter has a sinus infection that has gotten into her tear ducts and I was just noticing that it seems way worse in her Duane's eye than in the...
I was diagnosed with Duanes when I was a baby and I recently had my first child. She is 7 weeks old and I am so worried about her eyes. I hear my family...
I'm so glad I'm not the only one out there that is having this issue. My son has type 2 left eye and his head turn was greatly reduced after surgery 3 yrs...
along with Daunes Type 1, I just learned my son has P.D.D. are there any parents with same, we have not recieved any teratment plan yet, so Im fishing for...
visit www.vitiligoherb.com www.antivitiligoherb.com www.treatmentofvitiligoherb.com TEN IMPORTANT QUESTION ABOUT VITILIGO What do you think is causing my...
... Ok, I am 43 now with DS in my right eye. My handwriting was considered "ugly" by many teachers. But I don't think this is or was related to DS. From the ...
My daughter, 2 1/2 year old Kynlee hasn't had surgery yet, but I have a few questions about the degree of the head turn before surgery is done. Five months...
My 11 month old Whitney underwent VRT and MRR surgery on Monday up at Duke Eye Center. There were no complications with surgery or anesthesia. That was such...
Hi Gail. I know, the problem of labeling is really bad, especially if you're in a small community. I have only just begun to look into formal schooling, as my ...
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