hi Sara; You have some very good questions of which I am also in need of answers but I can tell you what I go through and hopefully this will help you out. If...
Elaine you wrote >>>>ciara has been walking now for 3 or 4 months but we noticed that she has ben stumbling a lot -she has been diagnosed as being flat -footed...
Just looked it up online--Enyedi is an assistant under Buckley, it appears. The website is http://www.dukeeye.org/ if you haven't seen it. I know nothing else...
Edward Buckley at Duke did my surgery. His office told us that he does more of the VRT surgeries than anyone on the east coast. We were happy with him and...
By that, I mean somone well know for this...I thought I remember someone mentioning this a year or so ago. We have just moved to North carolina and my dd's new...
I know that Dr. R at UCLA is the undisputed expert in surgery for Duanes' Syndrome. I'm curious about what people's experience has been around getting...
Hi Desiree. This definitely helps...thank you! It's very important for me to learn about everyone's experiences. I pray that your daughter's surgery goes...
hey sara maybe you can help me out and that way you may feel better about your self, my son henry is 2 1/2 years old with Ds-1, and i would like your...
Hi It may well have been that because I was born in 1940 and had operations then that the specialist did not know enough to have developed my binocular vision...
I hope that I am not overstepping my bounds, I have started another group for parent's of children with Duane's Syndrome, and Adults with Duane's Syndrome that...
I have had a lot of experience in the past 4 years on how to not deal with the condition my son is in. I live in Central Wisconsin. Is there anyone else in...
Hello everyone all aroun the world!!! Thankyou to everyone who has responded to my email - the responses have been overwhelming to say the least - Firstly i...
Hi. I'm an adult with Duane's (almost 42) and have a 3.5 y/o son with bilateral Duane's, too. I have been absolutely fine all my life, with the exception of a...
Welcome to the group, Rob! I'd like to comment about the Duanes getting worse. It is true that the Duanes itself doesn't get worse. However, what you see in...
Thank you so much for the reply Pat. It is very comforting to know that this condition has not affected your ability to lead a normal life. Rob ... condition ...
Hi Rob As a longtime sufferer of Duanes Type 1 myself, I can only say the condition has not worsened in my case over time, nor have I ever suffered headaches...
I am so happy to have come across this discussion group. So many of my initial questions have been answered just by reading through the posts. Anyway, it's...
Wow just reading this amazes me my son is almost four he had surgery which was very successful for Daunes syndrome type II left eye back in september 2004 - ...
It's a reliefe to here that I am not alone. We have been dealing with the difficulty at school, the lack of friends, the anger outbursts, sudden crying fits,...
I was wondering if people have had success with vision therapy. The eye doctor told me not to do anything and that my son will learn to compensate on his own,...
Barbara, As a new mother and a person with Duane's, I have to encourage you to have a child of your own if possible. I struggled for 7 years to get pregnant...
Hi I have Duane;s type 1 in my left eye and had three muscle corrective eye operations as a child in the 1940's. I was told nothing else could be done as over...
Someone posted recently that they use one eye for reading and the other for distance. I was doing that for years, and I think that really made my headturn...
Hi Anita. I only started considering surgery in the last year or so, because I was never bothered by my Duane's until then. Since my new glasses seem to have ...
Dear Liane, You may have said before, but why is it that you have not had VTR surgery on your own eyes? Especially since your son's surgery was so successful?...
Anita Johnson
ajohnson@...
Apr 1, 2005 8:44 pm
8354
Chad - I think you should definitely seek a second opinion. You don't sound satisfied with the information and explanations that this doctor gave you. But...
HELLO, My son alex has type 2 Left eye and is now 8. He is very smart but emotionally he is a mess. lol. He doesn't relate well to other children and prefers...
... Has already been answered. ... If you suffer from a head-turn, then yes, these problems are likely to be related with DS. ... Feel free to do so. I'm 43...
Well, I went in to visit the doctor today to see about having surgery for my Duane's. Several things have me very bothered by my visit. First, my doctor that...
My son has type II in his left eye. He's 10 now, and we have had a lot of problems with him emotionally, and cognitively. Has anyone else had experience with...
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