Hi Jodie Tahlia had her surgery in Brisbane with Dr Glenn Gole. Surgery was done at the Royal Children's hopsital in Brisbane. He has a special interest in...
Thank you for all the information. I truly appriciate the time you, and others have taken to help orient a new member. I just heard back from the doctor who...
Kezia, Thanks for the information and advice. I would never have thought about making sure Meg sat on the left in school and at story time! How cooperative...
I would agree with Shells that duanes doesn't generally keep us from playing all sports. It doesn't really affect swimming, track, biking, things of that...
Hi all, my name is Kerri. My daughter Bailey is 4. She was diagnosed with Duane's around age 1. I Had looked for information before and never found anything....
Dear Kerri, We are all lucky to have found this site...the yahoogroups has a wealth of knowledge. My daughter is 2 1/2 with Duanes Type I ledt eye (the most...
Welcome Kerri. I'm 26, and I had surgery for duanes when I was 23 years old (they didn't have surgery for duanes when I was small). It was a minor outpatient...
Ashleigh, Excellent description of duanes and surgery options. Thanks for posting. I'd like to mention that while patching will not provide additional eye...
!!!!! SOME GOOD NEWS FOR A CHANGE !!!!! The little boy looking for his family on the e-mail, has been re-united with his family. You can see his pictures on...
Hello All, Just thought I would drop in to say hello my Son has Duanes and will be getting his second surgery possibly next month. he is 3 1/2 this time on...
Hi everyone, I haven't posted here in a while... dealing with other things. My son Ethan was diagnosed w/ Duane's - type 1, right eye when he was about 5-6...
Hi i have supported people with mobius syndrome and people with this condition have very specific facial features, there are a few self help groups on the ...
Hi Shells, Thanks for your posting... can you email me offlist what these specific facial features are? I'm not sure if my son has this or not... he can...
Jodie, you may already have seen this on other posts, but in case you haven't: Double vision occurs when someone with Duanes looks in the direction that ...
SariScribe@...
Jan 10, 2005 7:17 am
7941
I would just like to clarify that not everyone with Duane's has double vision when looking in the Duane's direction. I have bilateral Type I (much more severe...
I haven't found any, and have in fact felt distrust at times when POs have said that they have lots of experience with Duanes. How much could they possibly...
SariScribe@...
Jan 11, 2005 8:46 am
7943
I'm pretty good at suppressing the double vision too. I would have said exactly what Liane said if you asked me, but when the doctor started doing his prism...
Hello, My baby has been recently diagnosed with Duane's. We saw two different PO's: one who originally diagnosed and the other one who gave us a second...
Did any one hear about Dr.Lawrence Tychsen, MD Here is his link. http://webserver01.bjc.org/sfnet/BJC_PhysicianProfile.asp?DrNo='001126 Our Opthamoligist...
Our son had his first surgery at 53 weeks and the second when he was almost 6. Anne (Mom to Ian DRS Type ĶI) ... From: "katsivak" <katsivak@...> To:...
Madan, My son went to Dr. Tychsen last July at St. Louis Children's Hospital. He is 19 months old and has type 1, left eye with a minimal head turn. We went...
No, I haven't heard of him. Please let me know how it goes! Good luck, Sari In a message dated 1/11/2005 12:28:52 PM Central Standard Time, ...
SariScribe@...
Jan 12, 2005 5:46 am
7949
Hey Group, Of the people or parents who have had the VRT or Transposition surgery, what is the approximate time of the operation? From when your child was...
Thank you very much Krista. Madan ... http://webserver01.bjc.org/sfnet/BJC_PhysicianProfile.asp? ... __________________________________________________ Do You...
Chuck -- When my son had surgery at age one with Dr. Rosenbaum, he was the day's first patient, because they do them in age-order and he was the youngest one ...
Shana, Our son was 2 when he started wearing glasses and associated them with being 'grown up' since Mom and Dad both wore glasses. The only time he would...
My son was diagnosed with Duane's syndrom (type 1) when he was 7 months old. He is now almost 9 months old and beginning to try and walk, pull himself up, etc....
This is a great question. I just recently started wondering about the same thing. My son is turning one next week and he still can't walk. However, he...
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