Hi Mom B. It is a very individual decision as to whether to undertake surgery or not and of course no surgery should be undertaken lightly. You do not say what...
7308
tanyaeloise
Jun 1, 2004 2:37 pm
Hi Desiree-Sounds like a wonderful appointment and I am so happy for Alana. Yes, that sounds to me like she is not a candidate for any surgery. She is...
7309
tanyaeloise
Jun 1, 2004 2:42 pm
What degree is his headturn? Tanya--- In ... since ... 2...
7310
Hunter Family
huntersnowman
Jun 1, 2004 3:09 pm
Dear Mom B. I don't write in much anymore but often read the posts. I definitely think surgery is worth it. Alisa my daughter had hers at age 4 and I am so...
7311
james1127
Jun 1, 2004 4:50 pm
Can someone/anyone at least point me in the right direction for this?? Thanks, ... last ... prism's...
7312
Ashleigh Powers
ashleighsmith
Jun 1, 2004 6:45 pm
Prisms can sometimes help duanes (according to my doctor, they reduce the necessary head turn), but if they're annoying you, you should tell your doctor about...
7313
Ashleigh Powers
ashleighsmith
Jun 1, 2004 6:56 pm
Duanes can sometimes co-occur with other defects, but oftentimes it does not. If you've noticed things that trouble you, you might have it checked out, but...
7314
rbeanfarmer
Jun 1, 2004 8:08 pm
I read that you were looking for another Dr. outside of Springfield. I live in Wagoner, OK and take my daughter (13 mths) to Dr. Scott Sadeghi here in Tulsa....
7315
calanthaa
Jun 2, 2004 1:09 am
I'm in my mid 40's, and I'm nearsighted, too. I have bilateral DS. A couple months ago I got prisms in my glasses for the first time. It took a couple weeks to...
7316
SLPwoman@...
Jun 2, 2004 11:29 am
To Mom B. Surgery is totally worth it 150%!! Our daughter has bilateral duanes and had a head tilt when she looked forward. After surgery it was completly...
7319
Roger and Alison Romeo
momromeo
Jun 4, 2004 2:50 pm
Hi Liane, I don't which surgery, but am inclined to think it's MRR. I'll ask him next at the next appointment. I don't think there is *any* retraction. But...
7321
Faigy Bassman
fbassman2003
Jun 4, 2004 3:31 pm
I've had surgery 4 years ago, and since I gave birth about a year ago, I've been afflicted with the most severe headaches, which is usually this immense ...
7322
Ashleigh Powers
ashleighsmith
Jun 4, 2004 5:51 pm
From what I've read (and this research was fairly old, but I think it's still accurate): Two conditions can underlie duanes--a split nerve, which results in...
7323
Roger and Alison Romeo
momromeo
Jun 4, 2004 6:35 pm
Ashleigh, that is really interesting. How do doctors figure out if the nerve is split, missing or paralyzed? Would an MRI show that? Alison ... From:...
7324
Ashleigh Powers
ashleighsmith
Jun 4, 2004 6:50 pm
This research (pointed out to my parents by my original PO in the 1980s) was fairly preliminary, and the basic diagnosis was done by observation--if there was...
7325
Roger and Alison Romeo
momromeo
Jun 4, 2004 9:15 pm
Thanks, Ashleigh. The issue, then, is whether dd's eye issues are congenital or not. That's where the early photos of her may help, I suppose. There is one...
7327
tanyaeloise
Jun 6, 2004 2:25 pm
I am not sure what to make of it either but I did find some of the same with Eloise. I definately found some photos where here duanes eye was past midline. I...
7328
rbeanfarmer
Jun 7, 2004 2:53 pm
Has anyone had any experience with tearing / drainage with the Duane's eye? I have noticed my daughter's eye has been doing so more frequently here lately -...
7329
dmgmd50@...
dmgmd50
Jun 7, 2004 6:05 pm
Please change my email address to: dmgmd50@... Thanks. -- David Grossmann, MD dmgmd50@... DGrossmann@......
7330
attmomof3
Jun 7, 2004 7:24 pm
Hi, I am new to this group. My beautiful 8 month old son was diagnosed last Thursday with Duane's Type 1 in his left eye. I am still having a difficult time...
7331
ctrsmom2002
Jun 7, 2004 8:22 pm
Hi! My son (DS, type I , rt. eye) just had tear duct probing and irrigation on Friday the 4th. His eyes, especially the right, teared quite often. Whenever he...
7332
ctrsmom2002
Jun 7, 2004 8:27 pm
Does anyone have any info or personal experience with the Foerderer Eye Movement Disorder Center at the Wills Eye Hospital in Philadelphia?? Thanks for any...
7333
Alison Romeo
momromeo
Jun 7, 2004 9:01 pm
... My 12 mo dd just had a sedated MRI a few weeks ago. She didn't have an IV, they gave her nembutol and something else that I'm spacing on right now orally....
7334
Don & Sue Ware
warehousesue
Jun 8, 2004 10:32 am
Hi there What a pity that you have developed these nasty headaches. You say that they started after you gave birth to your baby about a year ago... I am...
7335
Valerie Beil
attmomof3
Jun 8, 2004 5:18 pm
Alison, Thank you so much for the reassuring information. My son is also a very happy, active and healthy baby! No one in my family noticed anything but me...
7337
SLPwoman@...
Jun 8, 2004 10:16 pm
Valerie- I remember being very overwhelmed when my daughter who is 8 years old now got diagnosed at 3 months of age. However, her doctor at wills gave us the...
7338
Sara
xoxbubbles
Jun 8, 2004 11:35 pm
hey i'm from charlotte, n.c and i have duanes syndrome. you may see me on the photos part under "sara"... that was about a year or two ago. anyhow... i was...
7339
ashleighsmith
Jun 9, 2004 2:09 am
Hi, Sara. I think I just responded to a message you'd posted on another web board regarding surgery. Briefly, I wanted to let you know that though surgery...
7340
mamainmo
Jun 9, 2004 3:48 am
Stacy Thanks for posting such a positive statement. My son was diagnosed at 10 months with Type 1, left eye. He is now 12 months. It has been very difficult...
7341
Trina Whittleton
trixy416
Jun 9, 2004 4:51 am
I am a 21 year old with duanes and I have the opposite reaction, my eyes don't tear properly. I have to put drops in just to keep them moist. In my opinion...
