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duanes · Duane's Retraction Syndrome
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Topics   (List as Individual Messages) Messages Latest Post

You may want to get another opinion. It sounds as though they may have overcorrected her eyes!?! My son had MMR surgery in January and we are very happy with...
2 Mar 10, 2004
12:19 pm

mamacitakay
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Hi Julie, I've been meaning to ask you a question about India. I noticed in some of her pictures she was wearing eye glasses and I was wondering what for....
3 Mar 10, 2004
11:26 am

Jools
jda32uk
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Hi All, I'm sorry I didn't post earlier, the past week was a hard week for us. Tiffany's VRT surgery was done by Dr. R on Tuesday, it wasn't as smooth as we...
5 Mar 9, 2004
5:35 pm

wangangie
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My one yr old has had 2 really bad ear infections one resulting in fluid in her ear and resulting in appts with ENT specialist, the other one just clearing up...
1 Mar 9, 2004
12:51 am

kirra15012003
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Hello everyone, Well, Jordan had full VRT surgery this past thursday and her results were pretty much what I had anticipated. Her medial muscle is moderately...
6 Mar 8, 2004
6:03 pm

Diane
slakkr298
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My daughter had a medial rectus recession two years ago. She is now 6 years old. Right after surgery she began to turn her head the opposite direction. The...
1 Mar 8, 2004
5:49 pm

mamacitakay
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Hi there, It's my first time posting and I'm so glad to have found this group! My 19 month-old son has duane in the left eye (type 1.) We discovered it when he...
3 Mar 8, 2004
2:46 am

Aileen Abramowitz
gabbicarly
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Hi Angie I am so sorry to hear of your difficult week and in particular wish to extend our sympathies to you having miscarried your third baby - in itself that...
1 Mar 7, 2004
6:11 am

Don & Sue Ware
warehousesue
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My 6 year old daughter has Duane's or a 6th nerve palsy. She had surgery, medial rectus recession to the left eye, when she was 4 years old. We first went to...
1 Mar 4, 2004
2:38 pm

mamacitakay
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Hi I am currently doing a degree in Epilepsy her inthe UK. Duanes is not one of the conditions listed with epilepsy. regards Shelley...
1 Mar 3, 2004
8:13 am

petshell
petshells
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Hi Does anyone here have Duanes and Epilepsy? And if so, are either of them linked??? Thanks, Kris x...
1 Mar 3, 2004
12:42 am

Kristen
kristenbrownuk
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Hi- I'm new to this group and thought I would post my story now since I have some questions. Zoe was diagnosed with duane's at the age of 6 months. She has...
4 Mar 2, 2004
6:53 pm

ctrsmom2002
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Hi Sari, Does your daughter have a head turn or tilt? My daughter with Duane's is almost ten and has been taking ballet (and tap and jazz) classes for four...
11 Feb 28, 2004
9:17 pm

leslie olmstead
leslie_o92
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Hello, I'm not sure if I've actually properly introduced myself and my daughter's story. I've been reading posts but I haven't actually posted myself for a...
2 Feb 28, 2004
9:12 pm

leslie olmstead
leslie_o92
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I haven't posted in a few weeks because the entire family has been sick. Well, Jordan is scheduled for visits with Dr. R. on 3/3, 3/4, and 3/5. Because she...
2 Feb 27, 2004
1:19 am

Aileen Abramowitz
gabbicarly
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Hi Tanya. Sorry for the delay. I was on vacation, and didn't have Internet access! I actually have very little retraction; what he noticed was that the right ...
3 Feb 26, 2004
4:53 am

tanyaeloise
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Hi everybody! I hope everyone is well. I am behind on posting and been so busy so this will be a mish-mash of posting of many different ones I have just...
1 Feb 26, 2004
4:46 am

tanyaeloise
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Hi everyone, I am a bit confused about some of the information I am reading in the posts. As many of you know, Kiara's PO at Mass Eye and Ear in Boston wants...
2 Feb 26, 2004
4:20 am

tanyaeloise
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You're going to want to find a Pediatric Ophthalmologist. They're the ones that know the most about duanes. You want someone who knows alot about strabismus....
3 Feb 26, 2004
1:03 am

Bhettle@...
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I'm new to this group so I'm not exactly sure who is receiving this. My Daughter and I both have Duane's and even though I could go into depth about that, I...
2 Feb 26, 2004
12:55 am

leslie olmstead
leslie_o92
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My daughter is 3 years old. I have known about her condition for 2 years and at this point I really haven't thought to much about it. I was told that she...
5 Feb 26, 2004
12:41 am

leslie olmstead
leslie_o92
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Hi, Maria - I just read your post saying you are from Hawaii. I am, too (Kailua). I thought I was the only one on this group from Hawaii! Whom have you taken...
2 Feb 25, 2004
2:39 pm

Liane F. Herbst
lfran84
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My daughter is stubborn, I finally talked her into toilet training by telling her that she can't go to school until she's toilet trained. It took three hours...
1 Feb 25, 2004
8:25 am

Chaya kostelicki
chaya_m_kost...
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Does anyone know (first hand if possible) of any opthomologists who have any degree of speciality with DRS in the state of Georgia? I'm a 33yo male with type...
1 Feb 25, 2004
5:39 am

... --- ...
wnm1972
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Hi, This is Deborah. Could someone please tell me the degree of headturn that calls for V. T. Surgery? My Whitney (age 8--type 1, left eye) was scheduled for...
1 Feb 24, 2004
7:48 am

dburnett1500
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Thanks for adding the photo. That is a very clear and easy to see illustration. Barbara...
1 Feb 23, 2004
10:39 pm

Bhettle@...
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This might sound a bit crazy but has anyone had any problems toilet training their children? x ___________________________________________________________ ...
4 Feb 23, 2004
9:02 pm

deshawaii
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A Google search on Duanes retraction syndrome lists this web site as NUMBER ONE. Strangely a search on duane's (with an apostrophe) does not show this site...
2 Feb 23, 2004
8:53 pm

deshawaii
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The MRR is not a one-size-fits-all treatment, but I'm guessing that the doctor can tell approximately how much he'll need to adjust by measuring the head turn...
3 Feb 23, 2004
3:39 am

m040630
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I know there are 3 people scheduled for surgery in the next couple of weeks. I just want to wish the families the best of luck, good results, speedy...
2 Feb 22, 2004
2:21 pm

Aileen Abramowitz
gabbicarly
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