I would go see Dr. Marmor in Long Island. His number is 631-474- 4200. I have talked with him at great length on the phone. He seems very knowledgable on...
Hi I can't find the post but I know I read one recently where someone was looking for a PO in Chicago. I have a great recommendation only it is not in Chicago...
Dr. Marmor is a pediatric opthalmologist, although, I do not know if he also sess adults. Good luck! Aileen tanyaeloise <tanyaeloise@...> wrote: I would...
Ashleigh, Thank you so much for taking the time to "explain" your answer to my question. I think your thoughtful response has given my husband and I a much...
I have to say Ashleigh your response regarding Duanes progression was superb in its explanation and I for one would recommend that this message is placed in...
Hi group, I am a new member, 40 something with Duane's. I am scheduled for surgery on Feb 9, am appealing John Aldens denial for not medically neccessary. They...
Hi Cindy, I, too, am 40 something and looking into surgery. I haven't gotten to the point of dealing with the insurance companies, but I was wondering how you...
Monica, It's very nice to meet you. I went to an optometrist, who finally gave me a name for my eye disorder. He sent me to see an opthalmologist who...
Hi there- I live in setauket-moved here from glen head. My daughter's Opth is Steven Rubin-He is the chief opth at north shore manhasset-he's great. looks like...
My son Camryn has just been diagnosed with Duane's syndrome. He is 5 months old. My husband and I have only had one visit so far with the PO. It was very...
Hi Genevieve, Welcome to the group. My daughter, Jordan, was diagnosed with Duane's Type I at the age of 6 months and her condition was present at birth. She...
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Tracy Pratt
tracyp@...
Feb 4, 2004 8:10 pm
My daughter is also 5 and in K. She does not have any learning problems whatsoever and is actually quite advanced. She reads and writes at the first grade...
I have never heard a PO say that Duanes and learning problems are connected. I have heard of hearing problems being connected. Different learning problems and...
I did not notice any unusual crankiness. If you feel something is not right with the shakiness try to video it and show it to your doctor if camryn does not...
Hi! I am a teacher and could never imagine telling a parent that his/her child was "dumb". The teacher should look at every possibility that could be...
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Bhettle@...
Feb 5, 2004 12:32 am
In a message dated 2/4/04 11:47:21 AM Eastern Standard Time, ... I hope you realize though that Duane's isn't progressive. It isn't expected to get worse. The...
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Bhettle@...
Feb 5, 2004 12:45 am
... Please tell me that the teacher didn't use the word "dumb". That is NOT okay. Please don't put up that that for a minute. I would talk it over with her eye...
Hi Diane, Thank you for writing back. I believe Camryn has Type 1. Honestly, I don't even remember the PO telling me that. It is just from research that I...
Barbara, Thanks for replying to my note. If you don't mind me asking, what developmental delays that your son has? I have insisted to see a neurologist and I...
Try to keep things in perspective. I remember I used to watch Eloise kick like crazy as a baby and more with the right leg. After hearing about Duanes (right...
Tanya, Thank you so much for the words of encouragement. I have another 7 mths off with my son and will try to enjoy him rather than worry about what may...
My daughter with Duane's banged her legs while she slept while she was an infant. It drove me crazy. She would lift them in the air and slam them down in the...
My daughter has Duanes.. and she CAN be cranky, anxious and stressed (she's 23 yo)... I'd like to suggest to you that Duanes might be only PART of the...
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Anita Johnson
ajohnson@...
Feb 6, 2004 6:10 pm
Any teacher who says a child is 'dumb' should be fired and then hung out for the crows to pick their bones. Children learn in different ways and at different...
Hi Everyone, I am a very quiet member of the group, but now I have some questions I hope you can help me out with. My son has Duanes Syndrome. He's been...
Hi, Cally. If I were in your place, I would ask your PO about which surgery she is planning for your son and why. I would ask her opinion of the pros and cons...
I have a six year old son who has bilateral Duane syndrome. He had two surgeries for the Duane's when he was six months old and another one in 2002. He also...
I know that when I went to see my son's PO, one of the questions he had asked me was if he had any fingers or toes removed. There is apparently a link between...
