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duanes · Duane's Retraction Syndrome

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Messages 6170 - 6199 of 14402   Oldest  |  < Older  |  Newer >  |  Newest
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6170 kathy ken j chrusciel...
crushski Send Email
Aug 1, 2003
1:38 pm
Dear Yahoo! Groups Member, IMPORTANT NOTICE: As part of our efforts to ensure that all Yahoo! Groups users enjoy the same high-quality service, we will...
6171 Marylee
ml_squared Send Email
Aug 1, 2003
3:26 pm
Please remove me from your message board. thank you...
6172 Samantha Jarrell
pnkette Send Email
Aug 1, 2003
3:57 pm
please remove me also..i don't have time to read all of the constant emails. Marylee <marylee@...> wrote:Please remove me from your message board. ...
6173 tanyaeloise Send Email Aug 1, 2003
6:33 pm
I am wondering if anyone can answer a few basic questions... Does anyone know roughly how many VRT surgeries Dr. R has performed? For how long has he been...
6174 Desiree Glaser
deshawaii Send Email
Aug 1, 2003
6:58 pm
Hi, Tanya - don't know the answer to the Dr R question, but my impression is that he has done quite a lot. I think some of the other members would have a ...
6175 patsmith21@...
patsmith332000 Send Email
Aug 1, 2003
7:32 pm
Please continue to send me e-mails etc regarding Duanes - I was unable to access the page you mentioned on your e-mail - it said this page could not be found?...
6176 tanyaeloise Send Email Aug 1, 2003
8:46 pm
I thought it was the MRR that eliminates the headturn while the VRT procedure is the one to try to get more movement. I know it is possible to have VRT and...
6177 tanyaeloise Send Email Aug 1, 2003
10:38 pm
Hello Chaya- Children's Eye Physicians 303-488-0000. I would try to see Dr. King or Dr. Desantos. Also Dr Bowman-303-861-8888 at Childrens Hospital. They...
6178 deshawaii Send Email Aug 2, 2003
12:48 am
OK - this is my very basic understanding of DRS and the surgeries. The problem with DRS type 1 is that the nerve that tells the eye muscles to move the eye...
6179 deshawaii Send Email Aug 2, 2003
12:50 am
Forgot to mention in my last (very long) post that today Alana did the "eye trick." She kept looking at different things straight and then "crossed" saying...
6180 tanyaeloise Send Email Aug 2, 2003
2:24 am
Hi Desiree- The eye trick story is too cute. I am picturing her saying "One mommy, two mommies" Adorable! Anyway, we are sceduled for VRT with Dr. R. Oct...
6181 Liane F. Herbst
lfran84 Send Email
Aug 2, 2003
3:21 am
Tanya -- The vertical deviation is supposed to be correctible by further sugery. After 2 VRTs (my son has bilateral Duane's) he ended up with aligned eyes, ...
6182 Liane F. Herbst
lfran84 Send Email
Aug 2, 2003
3:23 am
Tanya -- I tried to get that information out of his office, with no luck whatsoever. Please let us know if you find this out! However, I think that the good...
6183 leslie olmstead
leslie_o92 Send Email
Aug 2, 2003
4:03 am
tanya- i am still struggling with the head turn issue. i can't decide if morgan has a head turn or not. since she is only 7 months old, i wonder if you can...
6184 Desiree Glaser
deshawaii Send Email
Aug 2, 2003
9:43 am
Tanya - what you describe with Eloise is what I fear. Your primary PO said that she didn't need surgery and Dr R said that she does. We may be sitting on Alana...
6185 tanyaeloise Send Email Aug 2, 2003
3:51 pm
Hi Desiree- The link with his information is http://www.jsei.org/patient_care/pc_Doctors.asp?DisplayEmployee.asp? EmployeeID=15601 This should be his resume...
6186 tanyaeloise Send Email Aug 2, 2003
4:03 pm
Hi leslie- When she looks at you straight(both ears showing) do her eyes appear crossed? It is hard to tell at that age. Is she sitting up by herself? In...
6187 tanyaeloise Send Email Aug 2, 2003
4:21 pm
I forgot to answer how Dr. R determines headturn....He basically looked at her and just said she has a 15-20 degree headturn. i was picturing some device that...
6188 tanyaeloise Send Email Aug 2, 2003
4:38 pm
Hi everyone- I have not looked into this firsthand but thought it was very important. Read post #5540 regarding state benefits. I hope this helps. I think...
6189 Liane F. Herbst
lfran84 Send Email
Aug 2, 2003
6:03 pm
Tanya -- I'm not certain about losing alignment with VRT. I think it is more likely that VRT alone is not completely successful in obtaining full alignment, ...
6190 kathy ken j chrusciel...
crushski Send Email
Aug 2, 2003
6:23 pm
Please post photos in the "photo" section of the web site so that they will be preserved for future reference. Once the file has been uploaded, there is a...
6191 tanyaeloise Send Email Aug 3, 2003
1:37 am
Hi Liane- We will be there Oct 26-29. What about you? I know Gavin (Jodi)is scheduled for surgery I think the 16th of October. Where do you live? Thank you...
6192 Liane F. Herbst
lfran84 Send Email
Aug 3, 2003
4:29 am
Hi Tanya. Our appt is for 10/20 -- but we live in LA, so there's no travelling involved, other than the hour-long trip that the rush-hour based appts tend to...
6193 Aileen Abramowitz
gabbicarly Send Email
Aug 3, 2003
5:50 am
Hi, I don't post often, but I do read the posts. I have a couple of questions. I haven't been able to read all of the latest posts, and I just now printed...
6194 Liane F. Herbst
lfran84 Send Email
Aug 3, 2003
6:34 am
Hi Aileen -- I'm glad to hear that things are progressing for you and that you're making plans to see Dr. R. What you described is common for Duane's -- the...
6195 tanyaeloise Send Email Aug 3, 2003
3:19 pm
Hi Aileen- Go to WWW.GOOGLE.COM and type in vertical rectus transposition surgery. I just did and many journal articles came up. As for VRT's primary...
6196 emjcol Send Email Aug 3, 2003
5:08 pm
... morgan has a head turn or not. since she is only 7 months old, i wonder if you can really tell yet. My daughter's consultant demonstrated her head turn to...
6197 bobcathey2 Send Email Aug 3, 2003
8:51 pm
-Aileen, last week I corresponded with Dr. R.'s office via e-mail with several questions. My understanding is that the VRT can corredt crossing, decrease head...
6198 tanyaeloise Send Email Aug 3, 2003
10:02 pm
Hi- I do not know this firsthand but had mentioned in a previous post that it is possible that the state (depending where you are) may cover some or all of...
6199 The Andrews
pa035 Send Email
Aug 3, 2003
10:07 pm
Hi, yes our PO here in the UK consulted with Dr. Rosenbaum in our daughter's surgical plan. India had VRT with Dr. Rosenbaum in LA and had MRR six months later...
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