Hi Debby, If you read some of the back postings I'm sure you will find that several of us in the group have children with hearing and/or speach problems. My...
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Lesley Hausmann
Lesley.Hausmann@...
Oct 4, 1999 11:42 pm
FYI -- I'm not sure I've seen other references on this site to this, but my PO told us that 10-15% of children with DRS also have high-end hearing loss, which...
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LLane73342@...
Oct 6, 1999 2:21 pm
I have also heard that statistic but heard it referred to as a "conductive" hearing loss. I have absolutely no idea what "conductive" refers to. Perhaps it...
571
jenniferparrisca@...
Oct 6, 1999 2:45 pm
AT 10 MONTHS MY DAUGHTER WAS DIAGNOSED WITH THIS SYNDROME, AND SINCE THEN I THINK I HAVE GONE FROM BEING SO SAD TO SO ELATED AT HEARING THERE IS A SURGERY TO...
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DLDINMORE@...
Oct 6, 1999 5:19 pm
Hi, Thanks for the information. I will be having Alex's hearing tested again in a month so we will see. I will see if the Dr. knows what conductive hearing ...
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SLPWOMAN@...
Oct 6, 1999 9:05 pm
conductive hearing loss is hearing loss caused by fluid in the middle ear- it is NOT permenent. Once the fluid clears, hearing is normal Sensory Neural...
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SLPWOMAN@...
Oct 6, 1999 9:07 pm
Duanes syndrome does not effect vision in any way and is not the cause of any other problems. The greatest advice our specialist gave us when our daughter was...
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Bhettle@...
Oct 6, 1999 11:37 pm
<< Duanes syndrome does not effect vision in any way and is not the cause of any other problems. The greatest advice our specialist gave us when our daughter ...
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Bhettle@...
Oct 6, 1999 11:42 pm
<< HOW SERIOUS IS THIS SYNDROME, AND HOW MUCH SHOULD WE WORRY? PLEASE, LET ME KNOW ANYTHING AND EVERYTHING THER IS TO KNOW I WOULD GREATLY APPRECIATE IT....
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Barbi
caboose@...
Oct 6, 1999 11:43 pm
I must have missed a post cause whoever wrote this is wrong. My daughter's Duanes is limited to her eyes, and trust me it does affect her vision, when the ...
578
LLane73342@...
Oct 7, 1999 4:51 am
In a message dated 10/6/99 3:12:50 PM Mountain Daylight Time, SLPWOMAN@... writes: << uanes syndrome does not effect vision in any way and is not the cause...
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Samolinski
tjsam@...
Oct 7, 1999 12:48 pm
This last message has brought up a question. My daughter, Alexa, age 33 months, has duane's in her left eye. No other disabilities. She has always been an...
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Barbi
caboose@...
Oct 7, 1999 4:17 pm
I must have missed a post cause whoever wrote this is wrong. My daughter's Duanes is limited to her eyes, and trust me it does affect her vision, when the ...
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mbyrne@...
Oct 7, 1999 4:17 pm
Hi, my name is Monique, and I am new here. My daughter was just diagnosed with bilateral Duanes last week. We are currently awaiting an appointment with...
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Anita Johnson
ajohnson@...
Oct 7, 1999 5:06 pm
Dear Julie, Get a book called THE DIFFICULT CHILD, Stanley Turecki, M.D. He writes about children who are 'difficult' and helps the parent develop a course of ...
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Paul and Julie Andrews
paul@...
Oct 7, 1999 6:27 pm
Dear Monique, I think we all now realise that each case can vary enormously and this also applies to whether surgery is successful or not. What works for one...
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Paul and Julie Andrews
paul@...
Oct 7, 1999 6:27 pm
Hi Julie, As I mentioned to you before, it is so easy to blame everything on the Duanes and become completely paranoid that they must have some other kind of...
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Bhettle@...
Oct 7, 1999 8:28 pm
<< My daughter was just diagnosed with bilateral Duanes last week. We are currently awaiting an appointment with another PO, as the one last week had never...
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Bhettle@...
Oct 7, 1999 8:28 pm
<< As a baby, she fussed constantly. I thought it was colic but it never really went away. Doctor's ruled out any illnesses. She thrived wonderfully, but was...
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LLane73342@...
Oct 7, 1999 11:12 pm
Another good book is The Out-of-Sync Child by Carol Stock Kranowitz. It talks about sensory intergration issues. Lisa...
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Debra Mardin
sdjcmardin@...
Oct 7, 1999 11:16 pm
Hi Julie My son has Duanes, ADHD, and a sensory integration disorder. He is 9 and in the 4th grade. He was actually diagnosed with ADHD before the Duanes...
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LLane73342@...
Oct 7, 1999 11:18 pm
Just to add to that my son Connor was pretty frustrated most of the time. He could just wake up mad and frustrated. This has changed dramatically since he...
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Maurice D Atkin
matkin1@...
Oct 8, 1999 12:55 am
Duanes is definitely not the end of the world. My wife of almost 58 years has had Duanes since childhood, and only now is considering corrective surgery....
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mbyrne@...
Oct 8, 1999 4:10 pm
I wanted to thank those of you who have responded to my first posting. I find it very comforting. In the responses, there were a few questions I would like to...
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Bhettle@...
Oct 8, 1999 7:35 pm
<< As it was explained to us, both nerves on either side of each eye fire at the same time. This causes her eyes to jiggle back and forth a little, but she...
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Paul and Julie Andrews
paul@...
Oct 8, 1999 8:46 pm
Dear Monique, I'm glad you feel the group is of some comfort, I certainly do! My daughter, India, was also delivered by Ventouse Extraction, but I am assured...
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Samolinski
tjsam@...
Oct 9, 1999 4:02 am
Thanks to everyone who responded regarding my daughter's "challanging" personality. Could any of you please give me more info on Sensory Integrative Disorder?...
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mbyrne@...
Oct 9, 1999 12:12 pm
... question would ... her eyes ... crossed? In ... though. ... the ... isn't in and ... good our ... turning his ... (hopefully the ... turn of ... problem...
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Petshell
shells@...
Oct 9, 1999 12:57 pm
Barbara i personally discourage Alex head turn. when he turns his head, it means he is not moving his right eye. the right eye has minimal movement and in...
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Bhettle@...
Oct 9, 1999 6:05 pm
<< My brother in law, nearly had to medically retire due to a frozen shoulder (caused by 40 years of head turning). i personally class that as serious! Also...
