Sorry I missed the chat room date - but I do not know how to access the chat room anyway as I have never been in a chat room before... Pat ... This mail sent...
5482
Rheadele17@...
rheadele17
Feb 1, 2003 4:22 pm
I went at about 8:45 EST and NO ONE was there :(...
5483
ewick66 <egiantman...
ewick66
Feb 2, 2003 12:58 pm
... For some reason I am unable to get into the chat. I will try and figure out whats the problem. Kim...
5484
clara1909@...
Feb 3, 2003 3:32 am
I was not sure of the time....I also went on at one time and no one was there. I am in Florida. There may of been a hour time difference or maybe longer....
5485
gambrazzio@...
gina_gambrazzio
Feb 3, 2003 6:35 am
Hi Clara, Im sorry to hear about Jordans experiance, Im not sure why Jordan is not able to do what the other children can. Is it just the duanes that slows...
5486
Bhettle@...
Feb 3, 2003 1:36 pm
... That sounds really hard and of course it's a big issue. Were the activities ones that physically he couldn't do because he was too young, were they too ...
5487
clara1909@...
Feb 4, 2003 4:12 am
Gina, Yes, Jordan has dystoina,abductor, "restless leggs" and Duanes. I know this may seem so very small to others..........but....I really need to know how...
5488
clara1909@...
Feb 4, 2003 4:22 am
Barbara, Thanks for your advise. Jordan is in pre-school. My mother ownes the child care center....what a Blessing. Jordan has always been around children...
5489
Desiree Glaser
deshawaii
Feb 4, 2003 9:14 am
Don't want to be a downer, but sometimes you have to be aggressive with IEP's. The DOE where I am from can be resistant and it takes a long time to get it...
5490
Parry Sound Employmen...
donnasedore
Feb 4, 2003 2:30 pm
This has also been my experience we have 2 years waiting lists and that's just to be seen, it's good to get your doctor on board. Donna ... From: Desiree...
5491
ewick66 <egiantman...
ewick66
Feb 4, 2003 4:51 pm
I don't know where every one lives but in certain parts of FLA there is a program called Fiddlers or child find. What they do is test children that are ages...
5492
Donna <djv6331@......
djv6331
Feb 10, 2003 2:50 am
Hi my name is Donna and I was diagnosed with Duanes Syndrome at the age of 18 months, I am now 44 years old I have lived with this problem my entired life ...
5493
Don & Sue Ware
warehousesue
Feb 10, 2003 10:54 am
Hi Donna and welcome to the group. You will certainly find a great deal of information in the past messages and in the FAQ document available. Do you know...
5494
Donna <djv6331@......
djv6331
Feb 10, 2003 11:26 pm
Hi thank you for the welcome, and yes, what a great source of information you have here. I live in Upstate NY a little county called Schenectady I am not sure ...
5495
ewick66 <egiantman...
ewick66
Feb 11, 2003 2:05 am
Welcome I am also new to this board due to my daughter having type 1. I felt very alone until I found this site. I mentioned it to my daughters eye doctors and...
5496
Parry Sound Employmen...
donnasedore
Feb 11, 2003 3:14 pm
Hi all, I am wondering if someone who is living with Duane's can help me. My daughter is 7 and she is having a really hard time at school. They constantly...
5497
Ashleigh Smith
ashleighsmith
Feb 11, 2003 3:51 pm
I going to assume that when you say "they" constantly correct her head tilt you are referring to teachers or other school personnel. I guess you've tried...
5498
Parry Sound Employmen...
donnasedore
Feb 11, 2003 4:18 pm
Thanks so much Ashleigh, it's as I suspected. Donna ... From: Ashleigh Smith [mailto:furman01@...] Sent: Tuesday, February 11, 2003 10:51 AM To:...
5499
Ashleigh Smith
ashleighsmith
Feb 11, 2003 4:30 pm
Okay--I'm finally getting the time to write back more systematically about my surgery. The surgery was January 3 (see below for some initial notes about the...
5500
Amy Rose
azrphr@...
Feb 11, 2003 6:15 pm
My son, Nick, has Duanes Type 1 in his left eye. He just turned 12, yesterday(!), and has learned many of the tricks to working with his Duanes over the...
5501
Anita Johnson
ajohnson@...
Feb 11, 2003 6:47 pm
Harrah, Ashliegh!!! aj ... From: Ashleigh Smith <furman01@...> To: duanes@yahoogroups.com <duanes@yahoogroups.com> Date: Tuesday, February 11,...
5502
Bhettle@...
Feb 11, 2003 9:10 pm
My suggestion would be that if the school personnel are so thickheaded that they can't hear a mother say she's supposed to tilt and that makes it so she ...
5503
Rheadele17@...
rheadele17
Feb 12, 2003 12:32 am
In a message dated 2/11/2003 10:53:03 AM Eastern Standard Time, ... as a teacher and a mom of a Duane's kid..I say AMEN! to that!...
5504
clara1909@...
Feb 12, 2003 3:09 am
Sue, Off the subject of Duanes for just a moment............. My son Jeremy who is in the Navy stopped in Australia while coming back to America in June,2002....
5505
Jo van Berkel <alb...
jovanberkel
Feb 12, 2003 7:24 am
Hi, my name is Jo, I'm married to Albert and we have four children, Jamie is nearly 8 Willem is 5.5 Caitlyn is 2.5 Kristen is 16 mths It is Willem who has...
5506
Don & Sue Ware
warehousesue
Feb 12, 2003 9:18 am
Hi Donna What a difficult time for you with the school situation. I don't know if our idea will be of any help to you but we made up a display folder for...
5507
Don & Sue Ware
warehousesue
Feb 12, 2003 9:32 am
Hi Clara May Thanks for your comments - yes we do live in a very special country and we are so grateful for the beauty of our land - I hope you can get to...
5508
Damon LaCaille
djcmom2002
Feb 12, 2003 6:48 pm
Donna, Hi, I found your email interesting. My son is 1 1/2, duanes type 3 and we have just begun patching last week. Were you having your "good" eye patched...
5509
Parry Sound Employmen...
donnasedore
Feb 12, 2003 7:18 pm
Hi Tracy: I’m not sure I’m the Donna you want, but, my daughter is Duane’s type 3 and we did patch for four years. Do you get the bandaid like patches...
5510
Michelle Harris
michellharris
Feb 12, 2003 7:20 pm
Tracy, I have a daughter with type I Duane's in her left eye and we were told the exact same thing. We actually patch both eyes (alternating days) for an...
