Hi All, I went to that chat last night at 9:00 pm Eastern and I couldn't find anyone. Did I mess up? I thought maybe there was just a lack of interest. Andrew...
506
Barbi
caboose@...
Sep 1, 1999 12:12 pm
I was there around 9:25pm EST and no one was there either :(...
507
Paul and Julie Andrews
paul@...
Sep 1, 1999 12:52 pm
Unfortunately for me I read my mail too late and realised it was in the middle of the night as we are in the UK! Hopefully I will make Chat Session #2 if it...
508
Travis Lambert
travlambert@...
Sep 3, 1999 1:21 am
Hi Barbi, Thanks for responding. We must have missed each other. I'm new to computers and it took me a while to get into the chat room. I would love to...
509
Travis Lambert
travlambert@...
Sep 3, 1999 1:21 am
Hi Julie, Thanksfor responding. I hope that there will be another chat room. I would to talk to other people who have Duane's, esp. other adults....
510
kcmail@...
Sep 3, 1999 2:30 pm
Hi everyone! We're going to have another try at our chat session and call it version 1.1 since the first scheduled session didn't work out. Let's plan to...
511
VCRVI@...
Sep 3, 1999 4:48 pm
Help! I need some info on duanes for my daughter. She is being reevaluated for her IEPC at her school. All the info I have is way to involved. Does anyone have...
512
Debra Mardin
sdjcmardin@...
Sep 3, 1999 9:39 pm
Hi What kind of modifications does your daughter have in her IEP? My son has an IEP too and maybe could tell you what types of support he receives....
513
kdsande@...
Sep 5, 1999 1:13 pm
I have just joined this site. I am interested in finding out on children with duanes that have other devolopmental problems or skeletal deformities. Bothe my...
514
kcmail@...
Sep 6, 1999 2:28 pm
Kelly, Here's my attempt to describe DRS: Duane Syndrome is an ocular motility disorder (eye movement) that is caused by either a teratogenic (in the womb)...
515
kcmail@...
Sep 9, 1999 3:15 pm
My sincerest apologies for missing the chat *again*. As moderator, I feel that I have let you down by not being there. I was washing dishes and forgot. It...
516
Travis Lambert
travlambert@...
Sep 10, 1999 3:04 pm
There were only two of us in the chat room on Tuesday night, but it was really wonderful to talk with someone else aboout Duane's and exchange ideas and...
517
kcmail@...
Sep 12, 1999 9:10 pm
I am forwarding this message from Flora Atkin to the Duanes list : Dear whomever, I want to hear from adults who have had surgery for duane's syndrome. I am ...
518
Paul and Julie Andrews
paul@...
Sep 13, 1999 8:24 am
Hi, I do not have duanes, but my 2 year old daughter will be having surgery in a couple of years to hopefully maximise her eye alignment and eliminate her head...
519
Travis Lambert
travlambert@...
Sep 13, 1999 3:05 pm
Hi Flora, I am a 48 y.o. adult women who had corrective surgery for Duane's. I had Duane's type I of my right eye which meant I could not turn my right eye...
520
Bhettle@...
Sep 13, 1999 6:38 pm
<< My questions are 1. Assuming that I will no longer have double vision when looking straight forward, will the "new"areas of double vision be an equal ...
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Paul and Julie Andrews
paul@...
Sep 14, 1999 9:06 am
Dear All, Some further info that I have not seen before! However, they seem to have the Types I and II the wrong way round....
522
Petshell
shells@...
Sep 14, 1999 9:40 pm
Julie, I have seen this one! We have duanes with associated okihiro syndrome in our family. Shells ... From: Paul and Julie Andrews <paul@...>...
523
cindyj123@...
Sep 15, 1999 11:10 pm
Hello, I just joined this group and I'm very glad to have found this site. I have had very little luck finding information on Duanes in the past. I have a...
524
Eric T. Mars
semars@...
Sep 16, 1999 2:30 am
... From: cindyj123@... [SMTP:cindyj123@...] Sent: Wednesday, September 15, 1999 7:13 PM To: duanes@egroups.com Subject: [duane] New Member << File:...
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Cindyj123@...
Sep 16, 1999 5:41 am
Dear Sharon, Thank you for sharing the information about your son's surgery. It's comforting to hear that the results were good, and that recovery was...
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Maurice D Atkin
matkin1@...
Sep 17, 1999 12:38 am
Thanks for your e-mail.Much appreciated. When you had your surgery, did you have a local or general anaesthesia? Was there much pain after the surgery? How...
527
Maurice D Atkin
matkin1@...
Sep 17, 1999 12:38 am
Thanks for e-mail re Duane's. and good luck to you and your son. Flora Atkin...
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Maurice D Atkin
matkin1@...
Sep 17, 1999 12:43 am
your e-mail re duane's. Good luck to you and your daughter. Flora Atkinfor...
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Travis Lambert
travlambert@...
Sep 17, 1999 5:07 pm
Hi Flora, I had general anesthesia when I had my surgery. The surgery was in September of 1989. I do not remember having any signifigant pain but I did have...
530
jkivlin@...
Sep 17, 1999 9:55 pm
I would like to know what patient education the group has found most helpful. One family I see obtained the NORD brochure but found it too technical. What I...
531
Bhettle@...
Sep 17, 1999 11:14 pm
<< I would like to know what patient education the group has found most helpful. One family I see obtained the NORD brochure but found it too technical. What...
532
Jane D. Kivlin, M.D.
jkivlin@...
Sep 18, 1999 4:52 pm
Thanks. Explanations aimed at the particular form of Duane syndrome that the child has have been what I have been using so far. ... From: <Bhettle@...> ...
533
kcmail@...
Sep 18, 1999 10:18 pm
Perhaps together we could design and publish a one page illustrated brochure to describe Duanes Syndrome in laymen's terms. This could be "published" on the...
534
Bhettle@...
Sep 19, 1999 5:22 pm
<< Perhaps together we could design and publish a one page illustrated brochure to describe Duanes Syndrome in laymen's terms. This could be "published" on...
