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duanes · Duane's Retraction Syndrome

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5039 lmhardaway23072 Offline Send Email Nov 1, 2002
12:46 pm
Thank you! for the kind and reassuring words; I am going to do just that-- relax and enjoy my children, and stop worrying about where that eye is all the...
5040 Bhettle@... Send Email Nov 1, 2002
1:39 pm
... I think it's the bigger picture not just the age they walk but their overall motor skills development. Under 17 months I think is normal. I've read the ...
5041 Liane Herbst
lfran84 Offline Send Email
Nov 1, 2002
1:55 pm
Tell me about it! I've been debating about reading glasses for about a year now. One interesting suggestion that was made (and apparently people love it,...
5042 Liane Herbst
lfran84 Offline Send Email
Nov 1, 2002
2:00 pm
That's a good idea about an eval. Thanks. Elliott just started walking a couple of days ago, but he's going at it like a pro. A day or two of just a couple...
5043 lfran84 Offline Send Email Nov 1, 2002
2:22 pm
... concerned ... and "lazy legs" ... oldest of the ... these ... children.....myself ... Gayle was ... sisters to ... problems? ... that can be ... the...
5044 Bhettle@... Send Email Nov 1, 2002
3:01 pm
... Does he need to W sit - knees forward feet back on either side of his hips? That's often a sign of low muscle tone. That was the case with my son and he ...
5045 Brandi Campbell-Stovell
brandilynwind Offline Send Email
Nov 1, 2002
7:34 pm
Hi all, I just had to get in on the walking action my son Rylen {my child with duanes} started walking at 9 months old.LET ME TELL YOU IT WAS NO PICINIC!!...
5046 Caroline Andrews
englelab Offline Send Email
Nov 1, 2002
8:31 pm
5047 Rheadele17@...
rheadele17 Offline Send Email
Nov 1, 2002
9:46 pm
One of the questions the Child study team asked me was if vietta crawled normally. I was thinking at the right age. They meant in normal position. I never made...
5048 alisonslp Offline Send Email Nov 2, 2002
2:39 am
... 10 mo. That's more common, I'm not surprised. It's not uncommon for children as young as 6-7mths walk holding on, but they tend to take longer to actually...
5049 alisonslp Offline Send Email Nov 2, 2002
3:01 am
this is great news! I just sent a note to the email address listed to participate. I tried this once before, but was never contacted back....
5050 Rheadele17@...
rheadele17 Offline Send Email
Nov 2, 2002
3:03 am
In a message dated 11/1/2002 10:01:55 PM Eastern Standard Time, ... wonde why/ I am a participant...
5051 Susan Krajewski
susan_krajewski Offline Send Email
Nov 2, 2002
6:01 pm
Thank you for all of your responses regarding gross motor delay and Duane's syndrome. It is my understanding as well that the normal range for walking is up...
5052 Rheadele17@...
rheadele17 Offline Send Email
Nov 3, 2002
12:55 am
Hi, Vietta seems to close her left eye alot. has anyone ever noticed this with their kids (or themsleves)? I asked her if she sees better when she does it and...
5053 lfran84 Offline Send Email Nov 3, 2002
4:39 am
It's not something I do. But I was told that I probably suppress the images coming from my Duane's eye, so as not to see double. Does she see double? On a...
5054 Ruti Abarbanel
ruthi044ab Offline Send Email
Nov 3, 2002
1:30 pm
Hi to everybody I am a new member in this group too. My five years old son has Duane type 3 and a very serious malformation in his two internal ears therefore ...
5055 patricia smith
patsmith332000 Offline Send Email
Nov 3, 2002
3:17 pm
Hello Liane I have always had to look out of one eye or the other, because I cannot make my eyes merge into one when looking at an object - I tend to read with...
5056 gjwtemple@...
gjwtemple Offline Send Email
Nov 3, 2002
4:06 pm
Rhea, My eye closes itself. I really only notice it when the sun hits it or when I am tired. I don't seem to have control over it. Carla...
5057 alisonslp Offline Send Email Nov 3, 2002
7:02 pm
... all the therapies mainly speach therapy and fisiotherapy and I am not really convinced that this disposition is just because he is deaf.<<< I am a birth to...
5058 Rheadele17@...
rheadele17 Offline Send Email
Nov 4, 2002
1:29 am
In a message dated 11/2/2002 11:39:24 PM Eastern Standard Time, ... only when she looks left without turning her head...
5059 Caroline Andrews
englelab Offline Send Email
Nov 4, 2002
4:38 pm
Dear Alison Thank you for your e-mail and I am sorry that you previously did not receive a reply. I know that in the past I have tried to reply to a few...
5060 Caroline Andrews
englelab Offline Send Email
Nov 4, 2002
4:51 pm
Dear Jenny Thanks for your e-mail. We would love to enrol you in our genetic study of Duane syndrome and it does not matter where you are located or what age...
5061 Brandi Campbell-Stovell
brandilynwind Offline Send Email
Nov 4, 2002
7:39 pm
Hi all just wanted to add my son {now 5 }has always since I could remember also closed his affected eye .Like already said... more when tired or sick ,but the...
5062 Brandi Campbell-Stovell
brandilynwind Offline Send Email
Nov 4, 2002
8:00 pm
Hi Ruth ..I too have expressed concerns in this area .Although,my son also five is not deaf and is only slighty in comparison affected .{left eye type 1}I too...
5063 tanlln_1993 Offline Send Email Nov 4, 2002
8:30 pm
Just wanted to let you know of my experience - My daughter has Duane's and is seen by PO Dr. Earl Crouch in Norfolk, VA. Her pediatrician recommended him...
5064 dave wayne
evadenyaw Offline Send Email
Nov 4, 2002
8:37 pm
hi everybody, My daughter Sophie, a Duane's kid, is extraordinarily obstinate and quite easily frustrated. She remains so to this day. For example, she refuses...
5065 tanlln_1993 Offline Send Email Nov 4, 2002
8:45 pm
My daughter, age 4, has Duane's. When I was 5 months pregnant (in Chesapeake, VA) the local health department sent out a letter telling all pregnant women not...
5066 Brandi Campbell-Stovell
brandilynwind Offline Send Email
Nov 4, 2002
8:47 pm
Wow sounds all too familiar thanks Dave......Brandi ... Choose an Internet access plan right for you -- try MSN! Click Here...
5067 tanlln_1993 Offline Send Email Nov 4, 2002
8:56 pm
I can relate as well to this behavior. My daughter, age 4, can be extremely difficult with stubbornness and temper tantrums. Being that she is my first...
5068 Brandi Campbell-Stovell
brandilynwind Offline Send Email
Nov 4, 2002
9:09 pm
Wow ..I cant believe all this today ...My sons latest issue near impossible has been socks .As we live in canada it is extremely cold and there is no way he...
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