Hi everyone, I have a question. I noticed this weekend that Matthew (2 years old) does not move his tongue to the left. His left eye is the eye affected by...
366
Petshell
shells@...
Aug 2, 1999 9:05 am
Hi, we have just played a game in our house of touch the cheek with your tongue!! all of us can do it, even the guys with Duanes. Shells ... From:...
367
Linda Colton
coltonscorner@...
Aug 3, 1999 12:42 pm
Hi Kathy! This article is very interesting. Thanks for sharing. Maybe there will be hope for a "cure" in the future. :) Linda Northfield, NH...
368
lea424@...
Aug 3, 1999 10:29 pm
I thought that you might be interested to know about the results of Corey's MRI. Turns out that the neurologistfound what is known as an Arnold Chiari...
369
lea424@...
Aug 3, 1999 10:30 pm
<f0202b9b.24c7689-@...> wrote: original article:http://www.egroups.com/group/duanes/?start=335 ... not ... with ... at a ... for an ... the ... sense ... ...
370
Eric T. Mars
semars@...
Aug 4, 1999 1:07 am
Hi Linda & All, We just got back from being on vacation at the Jersey shore. We had perfect weather and a wonderful time. I didn't realize how badly I needed a...
371
Paul and Julie Andrews
paul@...
Aug 4, 1999 9:09 am
Hi Sharon, I too have noticed an increasing deviation inward from the primary position in India's left eye. I was told she could well have a squint as well as...
372
Petshell
shells@...
Aug 4, 1999 6:55 pm
i have heard that some people with duanes also have fusion?? of vertebrea at the top of the spine, could this be the same. i will look out my research for...
373
LLane73342@...
Aug 4, 1999 6:59 pm
Hi All: We just found out through a renal ultrasound that Connor only has one kidney! He is missing his right kidney, however, his Duanes (type I) presents in...
374
Mianic27@...
Aug 4, 1999 7:55 pm
I am curious how did this come about? Was Conner experiencing any difficulties to have a renal ultrasound? My husband has one kidney and my little girl has...
375
Petshell
shells@...
Aug 4, 1999 9:46 pm
Lisa, duane anomoly radial defects include renal agenesis- not sure, but there could be a link. i know from experience duanes' can have lots of associated...
376
SLPWOMAN@...
Aug 4, 1999 11:55 pm
we havent tested for that but i know from research it is very prevelant...
377
Bhettle@...
Aug 4, 1999 11:59 pm
<< We just found out through a renal ultrasound that Connor only has one kidney! He is missing his right kidney, however, his Duanes (type I) presents in the ...
378
Linda Colton
coltonscorner@...
Aug 5, 1999 12:32 am
This is a website that offers information and a support group for Arnold-Chiari Malformation. I hope this can be helpful to you. Arnold-Chiari Malformation ...
379
Linda Colton
coltonscorner@...
Aug 5, 1999 12:59 am
Sharon, Glad to hear you had a well deserved vacation. Good luck with the neurofibromatosis type one. I hope you don't have any further symptoms in the...
380
suesb@...
Aug 5, 1999 1:46 am
hello. I just got a call from Kathy today. our childrens PO gave her my number. Am I glad to find this site!!! this is my first time on the net. My son,Nick...
381
Paul and Julie Andrews
paul@...
Aug 5, 1999 5:18 pm
Hi Shells, My husband has fusion of two neck vertebra, which we only found out through at routine x-ray when he had whiplash after a minor car accident,...
382
Eric T. Mars
semars@...
Aug 5, 1999 6:37 pm
Dear Linda, Best of Luck with Matthew's appointment. I will keep him in my prayers. I know what you mean about losing faith in doctors. We have had similar...
383
Eric T. Mars
semars@...
Aug 5, 1999 6:37 pm
... From: Paul and Julie Andrews [SMTP:paul@...] Sent: Wednesday, August 04, 1999 5:10 AM To: duanes@egroups.com Subject: [duane] Re: eye...
384
Petshell
shells@...
Aug 5, 1999 10:09 pm
Julie, Alex too had speech delay, he was classes at the bottom of average!! i compared him constantly with his twin sister, who also had speech delay. (she...
385
Petshell
shells@...
Aug 5, 1999 10:15 pm
All love the fly test. Alex and Pete cannot do this as they have severe problems with depth perception. Has anyone tried the 'putting the tiger in the cage...
386
Linda Colton
coltonscorner@...
Aug 6, 1999 10:53 am
I came across this totally by accident but I thought it would be of interest to those of you with more than one member of the family affected by Duanes. S-K...
387
ROKATL@...
Aug 6, 1999 11:40 am
In a message dated 8/5/99 6:10:49 PM Eastern Daylight Time, shells@... writes: << Narrow eustachian tubes are also common in people with...
388
LLane73342@...
Aug 6, 1999 12:12 pm
Maria: A renal ultrasound was recommended by the genetecist we saw. Partly because of the Duanes and also because I have 3 kidneys ( 2 on the right side). He...
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Linda Colton
coltonscorner@...
Aug 6, 1999 12:59 pm
Lisa, I have heard that kidneys were one area that could be affected by Duanes. I thought it was only in their fuction but it may well be in their formation...
390
Linda Colton
coltonscorner@...
Aug 6, 1999 1:03 pm
Welcome to the list Sue. You will find it both informative and supportive. Glad to have another member. Linda Mom to Joshua (15+), Matthew (6) GHD+ and Tia...
391
Linda Colton
coltonscorner@...
Aug 6, 1999 1:12 pm
Hi Sharon! Matthew has never been given the fly test. I wonder if they'll do that at Children's? I'm glad Andrew doesn't seem to have depth perception ...
392
Linda Colton
coltonscorner@...
Aug 6, 1999 1:16 pm
Hi Shelley! Tiger in the cage? They certainly have some interesting tests don't they! :) Linda Mom to Joshua (15+), Matthew (6) GHD+ and Tia (3+) in...
393
lea424@...
Aug 6, 1999 2:28 pm
<26696-37a8dba9-160-@...> wrote: original article:http://www.egroups.com/group/duanes/?start=378 ... Northfield, ... Thank you...
394
lea424@...
Aug 6, 1999 2:28 pm
Hello all, We have a very important Ophthamologist appointment on the 10th of August, next week. Corey is going to read his first eye chart and we find out if...
