Please can I suggest that correspondence on this group is confined to the purpose to which it was intended, ie Duane's syndrome. Kathryn Reeve British but...
3609
petshell
petshell@...
Jul 2, 2001 5:45 pm
Please read archives on this subject Shells...
3610
Sd90mac2@...
Jul 9, 2001 11:56 am
Is there anyone with duanes syndrome in both eyes? My child has bi- latteral duanes. I was wondering what they see, if there is any good methods used to...
3611
JThomp6938@...
Jul 9, 2001 3:58 pm
My daughter might possibly have bilateral duane's. She definitely has it in her left eye and maybe her right. From what I understand, the double vision is...
3612
Nicoleyun@...
Jul 9, 2001 4:33 pm
Hello there.... My name is Nikki and I have bilateral duanes type 1. I'm 29 years old and I will be having surgery on both of my eyes at the first of August....
3613
petshell
petshell@...
Jul 9, 2001 4:49 pm
Alex has bilateral duanes he has had one op on his right eye to put it central!! did not work. Alex NEVER USES both eyes at the same time, he switches eyes off...
3614
Anita Johnson
ajohnson@...
Jul 9, 2001 4:56 pm
Megan, age 8 has bi-latteral duane S. We are scheduled to see Dr Rosenbaum at the Jules Stein Eye Institute in Los Angeles, July 1. - for an evaluation and...
3615
jawoolston@...
Jul 10, 2001 10:38 pm
Hi All, Sorry took so long to write back, was out with Madi for a few days and have been very busy at work. Just wanted to tell everyone Madison's surgery...
3616
Kezia Johnson
montanajohnsons@...
Jul 11, 2001 12:39 am
Congratulations on your success!! Keep us informed on how she does in the future! Johnson family Jennifer, age 7; DRS I ... From: jawoolston@... To:...
3617
vcrvi@...
Jul 12, 2001 12:45 am
Hi there. Our daughter who is 10 has bilateral Duanes type 3 . She has had 2 surgeries to correct, align, her eyes. She is doing pretty good, but does have...
3618
bernardusa2001@...
Jul 12, 2001 2:52 pm
Our 6 year old child has Duanes in the left eye. The alignment of the eyes is perfect, except our child cannot turn one eye to the left. This has NOT changed...
3619
Paul & Julie Andrews
andrews4@...
Jul 12, 2001 10:03 pm
Bernard, There is a lot of info around on duanes now and most of it seems to state that there is a higher incidence of amblyopia in DRS patients, mainly, I ...
3620
llane73342@...
Jul 13, 2001 3:04 am
Just a note of interest -- my son has developed amblyopia but it is in his non-Duanes eye. So we patch the Duanes eye which has the better vision....
3621
Paul & Julie Andrews
andrews4@...
Jul 13, 2001 2:45 pm
FORWARDED MAIL i DO NOT KNOW HOW TO POST THIS MESSAGE TO THE CHATROOM SO I THOUGHT I WOULD TELL YOU,BECAUSE YOUR NAME WAS ON THERE. GENE TRANSFER PROGRESS IS...
3622
jbeazoglou@...
Jul 14, 2001 2:44 am
Dear Julie- I know you responded to Bernard's email and stated that you are patching India's eye. I thought I read in the past that you said patching doesn't...
3623
Paul & Julie Andrews
andrews4@...
Jul 14, 2001 3:02 pm
Dear Lisa, Sorry if you misunderstood what I meant about the patching issue. India is patched to prevent amblyopia (deteriorating visual acuity). At a young...
3624
jbeazoglou@...
Jul 14, 2001 6:36 pm
Dear Julie- Thanks for all the helpul information. Hannah is two now. When India was younger, how did they test her vision? Thanks for sharing. Lisa...
3625
Paul & Julie Andrews
andrews4@...
Jul 14, 2001 9:15 pm
Dear Lisa, At age two it is usually done with picture cards. India was always given a sheet to "memorise" if you like when she was around 18 months so that...
3626
GJWTemple@...
Jul 15, 2001 4:13 am
Thanks Dan! I will post that! Carla...
3627
GJWTemple@...
Jul 15, 2001 4:15 am
Hey all. I got an email from Dan Rooney. He said that there is research to locate the gene to find a cure. He said that if anyone was interested to do a...
3628
Nicoleyun@...
Jul 15, 2001 4:23 am
Hey Carla.... Thank you so much for the info. This is very exciting news for all of us. I am most definitely going to do some research!!! Again, thanks for...
3629
Eric & Sharon
semars@...
Jul 15, 2001 9:07 pm
Thanks! I will be interested in looking into this. Sharon Mother of Andrew age 7 Duane's Type 2 left eye ... From: GJWTemple@... [SMTP:GJWTemple@...] ...
3630
Ken Kathy Chruscielski
kcmail@...
Jul 15, 2001 10:02 pm
Attached is a photo with a comparison of Daniel using a head turn to achieve binocular vision and misalignment without the head turn. These were taken when he...
3631
Robyn Joils
robynj@...
Jul 15, 2001 11:38 pm
Daniel is very cute! Thanks for sharing the photo with us, Robyn Ryan ... ________________________________________________________ Robyn Joils 23 Wahroonga Ave...
3632
jbeazoglou@...
Jul 16, 2001 6:11 pm
Thanks Julie for the information. It has helped immensely. Lisa...
3633
Paul & Julie Andrews
andrews4@...
Jul 19, 2001 9:55 pm
Dear Sue and All Just to let you know that India had her pre-op assessment on Tuesday and her surgery will still be going ahead on the 31st! Her PO confirmed...
3634
Don & Sue Ware
don_sue_ware@...
Jul 20, 2001 9:25 am
Dear Julie So glad to hear all is going well in preparation for India's MRR and that it will proceed as planned this month. Her recession is to be exactly the...
3635
Don & Sue Ware
don_sue_ware@...
Jul 21, 2001 5:43 am
Finally a photo of Tahlia post MRR. For those who haven't been in the group long... Tahlia has Duanes Type 1 Left eye - she is one of identical twins aged 4yrs...
3636
Kezia Johnson
montanajohnsons@...
Jul 21, 2001 2:58 pm
Hi Sue in Australia, WOW!!!! What a beauty! Great success on the head-turn! Thanks for the photo, Johnson Family in MT Jennifer, age 7, DRS-I ... From: Don &...
3637
Paul & Julie Andrews
andrews4@...
Jul 21, 2001 4:18 pm
Sue, She look's fantastic! Tahlia is a beautiful little girl, you must be very proud. I too will share more photo's of India post MRR. Speak soon Julie A....
