Hi to Paul and Julie I was just floating through the archives and had a visit to your home page - thanks - India is so beautiful, I just wanted to give her a...
3282
Amy Clark
amjmclark@...
May 1, 2001 10:50 pm
I want to thank-you all for your support and the information you have provided me with. I feel a lot more knowledgeable because of all of you then I did when...
3283
amjmclark@...
May 1, 2001 11:24 pm
... Thank-you for the information. Amy...
3284
amjmclark@...
May 1, 2001 11:41 pm
... your email. I think your grandchildren are very lucky to have you. You are wonderfully supportive. I am also glad to hear the surgery was so successful....
3285
Don & Sue Ware
don_sue_ware@...
May 2, 2001 9:46 am
Amy I hope all goes well for you all with the next doctor's visit on Friday. My best wishes to your mum also ... I know what it is like to be involved with...
3286
Don & Sue Ware
don_sue_ware@...
May 2, 2001 9:48 am
Barbara, I have been reading back through the archives and note your son is to have surgery next month. I hope all is going well with preparations and that the...
3287
amjmclark@...
May 2, 2001 4:58 pm
... Amy...
3288
Paul & Julie Andrews
andrews4@...
May 3, 2001 3:54 pm
Dear Sue, So glad you got to see our home page! I always think it's nice when you can put a face to the name. Your girls are certainly lucky to have a...
3289
Don & Sue Ware
don_sue_ware@...
May 8, 2001 10:29 pm
Julie Working on some pictures - I don't have a scanner and we certainly aren't up to digital cameras! We have only recently been dragged kicking and screaming...
3290
Chris
notoez@...
May 9, 2001 2:34 am
Hello everyone, I am a new member of the group and new to Duane's. I was very happy to discover the group and see some of the supportive e-mails being sent....
3291
amjmclark@...
May 9, 2001 3:26 am
Christine in New York, Hi! I live in NY. I took my 8 month old daughter to see two doctors. One is Dr. Guillory in Manhattan. His office is near Mt Sinai ...
3292
Paul & Julie Andrews
andrews4@...
May 9, 2001 7:36 am
Dear Christine, Nice to have you with us. I think the best place to start is to read the bookmarks/links attached to this group. This will basically tell you...
3293
Paul & Julie Andrews
andrews4@...
May 9, 2001 7:43 am
Dear Sue, Cheers for the note. It will be great to see some photos! Very interesting reading about the ophthalmic specialist. India's PO here is up to date...
3294
rocknang@...
May 9, 2001 4:09 pm
Hi! My son was also diagnosed at 6 months. He has type 1 in his right eye. He is 13 months now. He is seeing Dr. Strome who works in the same office as Dr....
3295
Don & Sue Ware
don_sue_ware@...
May 11, 2001 2:57 am
To anyone interested in Tahlia's photos (also with her twin sister Keely), Photo No 1 is the first in the series so follow up the numbers to see the "flow". ...
3296
petshell
petshell@...
May 11, 2001 6:25 am
What beautiful little girls Shells...
3297
petshell
petshell@...
May 11, 2001 6:45 am
Here are some of our family photos too. Alex and his dad have Duanes. i willtry and find some of the older childrens pics. to scan through Shells...
3298
petshell
petshell@...
May 11, 2001 6:46 am
Alex and Jeri-Anne are twins. Alex has bilateral Duanes dad has to. However, dads right eye is only slight. so you would not know. Alex has had his op. to put...
3299
Don & Sue Ware
don_sue_ware@...
May 11, 2001 9:58 am
Hello to Alex and Jeri-Anne (I hope I remembered the spelling!) This is Tahlia and Keely talking to you and our Nanny is typing what we say to you. "Hello"...
3300
Don & Sue Ware
don_sue_ware@...
May 11, 2001 10:28 am
Dear All We have started something special at our place tonight. Tahlia and Keely want to have a special book with photos of their "friends" with Duane's...
3301
petshell
petshell@...
May 11, 2001 11:32 am
Dear Tahlia and Keeley i am Alex and Jeri-Anne's mummy. They are at school at the moment. When they get home i will get the mto write you a note. Jeri-Anne...
3302
Paul & Julie Andrews
andrews4@...
May 11, 2001 12:04 pm
Sue and Shells, Great photos! Alex has certainly come on a lot. He looks real cute in his football gear!! Sue, what beautiful girls. You must be very proud....
3303
Paul & Julie Andrews
andrews4@...
May 11, 2001 12:27 pm
Dear Sue, What a lovely idea about the picture book. At 31/2 India is not even aware that she has an eye problem yet, so we have not had many questions from...
3304
Don & Sue Ware
don_sue_ware@...
May 11, 2001 1:32 pm
Dear Julie As Tahlia is still only 4 weeks post op I am not convinced that we have the "final result" fully evident at this stage. As you are aware, VRT with...
3305
Anita Johnson
ajohnson@...
May 11, 2001 1:42 pm
Dear Sue, I think this is a great idea. Megan doesn't like for us to speak of her Duane Syndrome. Perhaps it will help her to see photos of other children...
3306
Don & Sue Ware
don_sue_ware@...
May 11, 2001 2:10 pm
Anita, Glad you like the idea too - looking forward to adding Megan's photos to the girls' book. Aren't we doing well for grandmas ... on the net and all!! I...
3307
Hunter Family
djsnoman@...
May 11, 2001 5:20 pm
We love the pictures. It is so fun to see her. Her case reminds me very much of Alisa's I can't wait to see the after pictures. It is very difficult to get...
3308
Paul & Julie Andrews
andrews4@...
May 11, 2001 10:28 pm
Dear Sue, Thanks for your further reply. I agree, whatever movement can be achieved past the midline is a bonus. I guess we will just have to wait and see how...
3309
petshell
petshell@...
May 13, 2001 11:40 pm
Hi Here are some pics (especially for Tahlia and Keeley!!). Mark was not going to enter in the fun of things for love nor money. Mark is 15 and currently very...
3310
petshell
petshell@...
May 13, 2001 11:41 pm
Lucy is holding Alex's head to prevent his head turn / twist!!!! Shells...
