Dear Duanes Group, First of all, I must express my gratitude to those of you who have started this group. Like so maney others, finding you has been such a...
2709
Donald Wheeler
dwheeler@...
Feb 3, 2001 11:29 pm
Hi everyone, Sarah, our newest member (*wave*) brought up some very interesting thoughts for me by her post. I too did not know a lot of things about duane's...
2710
Bhettle@...
Feb 4, 2001 12:53 am
<< I am wondering if another doctor would do anything different? I think his knowledge and treatment may have been right on. However, I don't think we would...
2711
JThomp6938@...
Feb 4, 2001 2:48 pm
Hi there, My name is Betsee and my daughter, Kyla, who is 14 months old was just recently diagnosed with Duane's. She has problems with both eyes, but more so...
2712
Ken Kathy Chruscielski
kcmail@...
Feb 4, 2001 2:53 pm
Dear Sarah, I am happy that you found our group and I appreciate your comments about all of the feelings that we had as parents of a child with a newly ...
2713
Elise Hatfield
happe_13@...
Feb 4, 2001 10:08 pm
About the pulling of the muscle during surgery is that they move the muscle to move the eye. The more they pull the muscle, the more the eye goes in the ...
2714
Elise Hatfield
happe_13@...
Feb 4, 2001 10:14 pm
I used to go to vision therapy after I had surgery for Duane's in my left eye. I did may things like bounce balls to help me with my depth perception, looked ...
2715
Elise Hatfield
happe_13@...
Feb 4, 2001 10:18 pm
Vision therapy can help the eye or eyes that its working go farther in the direction that is limited. It does so by both strengthening the muscle and making ...
2716
Paul & Julie Andrews
andrews4@...
Feb 4, 2001 10:21 pm
Sarah, It may be a possibility that Andrew is near-sighted. Most PO's upon first diagnosis would generally do a "glasses test" to assess their vision as this...
2717
JThomp6938@...
Feb 4, 2001 11:57 pm
For some reason I seem to be having a hard time posting on this list. So I'm sending my intro again. :) ... My name is Betsee and my daughter, Kyla, who is...
2718
Deenohio@...
Feb 5, 2001 1:32 am
How can a muscle that doesn't exist or is dead, be stengthened? Dee (mother of Shelly, 33, Duane's left eye)...
2719
Paul & Julie Andrews
andrews4@...
Feb 5, 2001 1:14 pm
Dee, In answer to your question, it can't! The only way of gaining some pull on outward motility is by transposing part of the vertical muscles to the...
2720
Toni Passano
tonipassano@...
Feb 5, 2001 7:21 pm
Hi Betsee, Glad you found us. My daughter was diagnoised last year and at first we patched also but got a second opinion that said she was using both of her...
2721
Elise Hatfield
happe_13@...
Feb 5, 2001 7:51 pm
The eye muscle is there. The wiring to the muscle may be a bit messed up though. You strengthen your eye muscle by pushing it to its limit for a little bit ...
2722
Nicoleyun@...
Feb 6, 2001 12:33 am
Hello friends.......
2723
Nicoleyun@...
Feb 6, 2001 12:42 am
Hello friends...My name is Nikki and I was 23 when I was told that I have Type II bilateral Duanes retraction syndrome. I am now 29 and wasn't really given...
2724
robynj@...
Feb 6, 2001 9:36 am
Hi. My 8-month-old daughter has DRS Type 1 in her right eye. Her PO picked it up within a minute of seeing her and made such light of it that I didn't really...
2725
robynj@...
Feb 6, 2001 9:43 am
Hi again. My PO also told me that DRS is quite a common condition. He said one in a thousand people in the general population have a form of Duane's. Does...
2726
Paul & Julie Andrews
andrews4@...
Feb 6, 2001 10:28 am
Robyn, Yes, what a jerk! I too have a similar experience and we also paid for the privilage of his insensitivity. "she will just learn to live with it, it is...
2727
JThomp6938@...
Feb 6, 2001 12:35 pm
My daughter's opth, not PO, just O :), didn't even actually bother to talk to me at the first visit; he just dictated to the assistant in there too. Quite the...
2728
JThomp6938@...
Feb 6, 2001 12:49 pm
Thanks Toni, Any info is useful. I feel like I'm very much flying by the seat of my pants with this Duanes. It's something that I know nothing about and it...
2729
MMLong3996@...
Feb 6, 2001 3:53 pm
I often wonder this as well. I know so many people that have children with Doctor diagnosed "lazy eye(s)." But, nobody has ever been told that its Duane's....
2730
rocksee401@...
Feb 6, 2001 5:00 pm
Before my daughter was diagnosed with Duane's her PO, referred us to a neurologist for a complete neurological work-up and a scan of her brain. I did not know...
2731
Toni Passano
tonipassano@...
Feb 6, 2001 6:45 pm
HI Robyn, My experience with my first PO was similar almost to the T... and I decided to consult a specialist and then spoke with the head of the Oth. dept of...
2732
MMLong3996@...
Feb 6, 2001 8:40 pm
In a message dated 2/6/01 12:02:58 PM Eastern Standard Time, rocksee401@... writes: << I did not know that a syndrome consisted of two or more symptoms....
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robynj@...
Feb 7, 2001 3:54 am
Hi Toni, Thanks for the advice. The problem is that we live in a fairly small city in Australia and, as far as I know, the PO we are seeing is the only one...
2734
Deenohio@...
Feb 7, 2001 5:38 am
I can't believe it is that common. My daughter was diagnosed at age 4, and she is now 33 years old. I am a Realtor and she is a manager with a very large...
2735
Deenohio@...
Feb 7, 2001 5:46 am
My daughters OP (at age 2) told us the muscle was missing, a stub of a muscle or dead. Her OP at age 13, told us her ability to see objects that are straight...
2736
Paul & Julie Andrews
andrews4@...
Feb 7, 2001 8:14 am
When we talk about frequency, I was told that there are many people who have duanes so mild (the nerve is there, but just slightly damaged) that it causes very...
2737
jenlukens@...
Feb 7, 2001 3:22 pm
DEAR GROUP: I JUST RECENTLY PURCHASED MY PC AND WAS THRILLED TO STUMBLE UPON YOUR GROUP.....I AM 28 YEARS OLD AND WAS DIAGNOSED WITH TYPE II DUANE'S SOON AFTER...
