Hello Julie, Sorry for the delay in replying - I went out of town for a family reunion this weekend. It is always interesting to see the family together all...
2177
Kathy J Chruscielski
kcmail@...
Aug 1, 2000 6:32 pm
Hi everyone! Just a note to say that Daniel's (mis)alignment has improved to just 6 diopters from center since our last visit 3 months ago when it was 8...
2178
Paul & Julie Andrews
paul@...
Aug 2, 2000 8:12 am
Kathy, Glad to hear things are going well for Daniel! All the best Julie Andrews...
2179
ana lee
analee76@...
Aug 2, 2000 7:02 pm
hello, i was 29 when i had my surgery for Duanes I, back in march of this year. i'm glad i had it done, although i'm still going through some post operation...
2180
Paul & Julie Andrews
paul@...
Aug 3, 2000 8:22 am
Ana, Did you go with the botox in the end? Let us know how its going. Julie Andrews(India DRS Type 1 left eye)...
2181
ana lee
analee76@...
Aug 3, 2000 8:43 pm
Yes, I had Botox injected to paralyze the inner muscle to strenghen the transposed muscle (VRT), back in 28th of May. I'm still wearing a patch to avoid...
2182
jackie.hunt@...
Aug 13, 2000 2:04 pm
Hi! I am the mum of a 15 year old girl who has this week been diagnosed as having Duane's. We were originally told she had Brown's syndrome, but further up the...
2183
Bhettle@...
Aug 13, 2000 2:22 pm
Hi Jackie, Welcome. Just one question. Are you saying that no one noticed anything unusual about her eyes from birth until age 15? Or, just that there was a ...
2184
Jackie Hunt
jackie.hunt@...
Aug 13, 2000 9:18 pm
Hi Barbara! Isn't the new world of Cyberspace wonderful! From not knowing anyone or anything about Duanes I feel that we are at least not alone!! To clarify -...
2185
Jackie Hunt
jackie.hunt@...
Aug 13, 2000 9:23 pm
... From: Jackie Hunt [mailto:jackie.hunt@...] Sent: 13 August 2000 22:23 To: duanes@egroups.com Subject: RE: [duane's] Newly Diagnosed Teenager Hi...
2186
Bhettle@...
Aug 13, 2000 11:06 pm
<< She has no head turn and functioned completely normally for 15 years without any double vision and has had annual eyesight tests since she was 10 as I am ...
2187
heygirl65@...
Aug 14, 2000 1:25 am
I have spent the last 3 days on the web searching for answers, experiences, and recommendations. My 11-month-old grandson has been diagnosed with Duane's left...
2188
elizabthjr@...
Aug 14, 2000 1:34 am
My 6 yo son was diagnosed at 8 months and so far he has not needed surgery. The doc told me when his head is at a 15 degree head turn then we will start to...
2189
heygirl65@...
Aug 14, 2000 3:55 am
Elizabeth Thank you for your informative reply. Putting a percentage on it is a lot better than just yes, no, or maybe. Thanks too for showing me how special...
2190
petshell
petshell@...
Aug 14, 2000 6:38 am
Hi, where abouts in the UK are you?? Mr Lee from Moorfields eye hospital London is renowned world wide for his expertise with Duanes. I have two step kids with...
2191
Paul & Julie Andrews
paul@...
Aug 14, 2000 8:29 am
Shells, I must say I am quite annoyed with Moorfields Hospital now, as when I first tried to track down a Duanes Specialist Mr Lee was not even mentioned. We...
2192
Marcus Brierley
post@...
Aug 14, 2000 11:22 am
Jackie I'm resident in the UK and have Duanes syndrome. I'm 55 and have had it all my life. My mother says I wasn't born with it, but I don't think she's...
2193
Amy Rose
azrphr@...
Aug 14, 2000 1:59 pm
Dear Pat, My son, Nick, is 9 and has not had surgery. The first doctor wanted to perform surgery when Nick was diagnosed (age 18 months'ish), but I found out ...
2194
petshell
petshell@...
Aug 14, 2000 4:40 pm
Julie, Mr Lee has done lots of research into Duanes and is renound as a strabismus and Duanes specialist. He did not wish to operate on Alex initially as...
2195
The Hunters
djsnoman@...
Aug 14, 2000 4:45 pm
Hi my daughter had surgery for Duanes about 4 months ago. We are very pleased with the outcome. There are two different surgeries that I am aware of one is...
2196
Jackie Hunt
jackie.hunt@...
Aug 14, 2000 7:00 pm
Hi Marcus Thanks for your kind reply - I haven't time right now to go into detail but we are logging all the information and trying to make sense of it all! We...
2197
Kathy J Chruscielski
kcmail@...
Aug 14, 2000 7:11 pm
For those who are translating the messages on this site, gotoworld.com website will send and receive messages in different languages. You may send a message to...
2198
elizabthjr@...
Aug 14, 2000 8:09 pm
My son started kindergarten last year. This year he has preferential seating (left side of the class) so he can see the whole chalk board and last year he ...
2199
Paul & Julie Andrews
paul@...
Aug 14, 2000 11:14 pm
Shells, Thanks for your reply. I actually e-mailed Dr. Lee direct and received the attached reply. I thought they may be of interest should anyone else in the...
2200
The Hunters
djsnoman@...
Aug 15, 2000 5:08 am
Dr. Rosenbaum didn't mention the first problem. I am guessing because she had no deficiency in inward motion. The second reason was mentioned to us but was...
2201
Paul & Julie Andrews
paul@...
Aug 15, 2000 7:27 am
Thanks Julie, I would be very interested to hear Dr. Rosenbaum's comments on these points. Keep us posted. Julie Andrews...
2202
Anita Johnson
ajohnson@...
Aug 15, 2000 2:53 pm
to all, I remember several things being said on the benefits of Early Childhood Intervention, on this forum. I have saved most of the mail but can't find...
2203
Todd & Kris White
whitelex@...
Aug 16, 2000 12:07 am
Hi all, Glad to see some conversation again on this list. Hope everyone is having a good summer. Our son Aaron has type 1 in his right eye, and we go to the ...
2204
Lesley Hausmann
lesley_hausmann@...
Aug 17, 2000 2:48 am
Our 20-month old son had surgery a couple of months ago because his head turn had progressed to 30-40 degrees, and was clearly a huge hindrance to him. ...
2205
Mike and Wendy
mailwendy1@...
Aug 17, 2000 5:01 am
Lesley - thanks for the info. This may be a stupid question, but where is my post and why can't I see it in the archives? I don't know how to get to current...
