A place for those affected by Duane's syndrome to share experiences and information with others. Group Manager: duanes-owner@egroups.com To subscribe, send a...
Kathy Chruscielski
kcmail@...
Mar 23, 1999 8:08 pm
2
Sara, Thank you for your input about your experience with Duane's. I'm glad that you had no developmental delays as it seems most of our group has. Perhaps...
K. J. Chruscielski
kcmail@...
Mar 23, 1999 11:21 pm
3
I have a nine year old son with Duanes. He also has ADHD and motor delays. He has had two eye surgeries--one at the beginning and one at the end of first...
Debra Mardin
sdjcmardin@...
Mar 24, 1999 12:30 pm
4
Did you/your child experience developmental delays along with Duane's Syndrome? ... Please select one of the following: o Yes, many o Some o None at all by...
kcmail@...
Mar 24, 1999 12:55 pm
5
Kathy,Having this website is a great idea. I am really impressed with the way it is organized. It will make staying in touch so much easier. It's also great...
coltonscorner@...
Mar 24, 1999 1:59 pm
6
Megan didn't smile or show any animation until about 5 months. She didn't sit until 8 months. I never associated her not smiling with her eye problem until...
Anita Johnson
ajohnson@...
Mar 24, 1999 6:25 pm
7
After reviewing earlier messages from the group, it seems that only Sara has had no other developmental problems with Duanes (am I right?). Daniel is so young...
K. J. Chruscielski
kcmail@...
Mar 24, 1999 7:44 pm
8
Linda ... eGroup home: http://www.eGroups.com/list/duanes Free Web-based e-mail groups by eGroups.com...
Linda Colton
coltonscorner@...
Mar 24, 1999 8:37 pm
9
Hi Anita! I am trying to do that now so I can try to get one of Matthew's doctors on our band wagon to try and get more research done. I plan on sending the...
Linda Colton
coltonscorner@...
Mar 24, 1999 8:49 pm
10
While I am definitely in agreement that more research should be done on Duane's Syndrome, I have a theory to present to you all: Yes, the majority of this...
Sara V.P.
dorismacafee@...
Mar 24, 1999 11:39 pm
11
<< While I am definitely in agreement that more research should be done on Duane's Syndrome, I have a theory to present to you all: Yes, the majority of this...
Bhettle@...
Mar 25, 1999 1:02 am
12
Sara I will remove your name from my personal list of the group as you requested. I am very happy for you that you have not had the additional symptoms that...
Linda Colton
coltonscorner@...
Mar 25, 1999 2:37 am
13
I have to agree with Barbara regarding our desperate desire for comparing our children and gathering as much information as possible about Duane's and any ...
ROKATL@...
Mar 25, 1999 2:40 am
14
To All, I briefly spoke to my son's Pediatric Opthamologist today. He is not aware of any studies related to Dev. delays and Duane's. However, he has talked...
semars@...
Mar 25, 1999 3:19 am
15
Concerning Sara's comments: She may be right that our group is not a perfect statistical sampling. However, when I was originally told of Bailey's Duanes, I...
GABIRD@...
Mar 25, 1999 3:30 am
16
Caleb has an appointment with his opthamologist today. Since Iwork at his school--I am a one on one aide for a kindergarten child with special needs I am...
Debra Mardin
sdjcmardin@...
Mar 25, 1999 10:54 am
17
Hi Debbie! Matthew also saw Dr. Cristie Morse for an eye exam when he was younger. We were referred to her by Dr. Stieglitz because at the time, Matthew would...
Linda Colton
coltonscorner@...
Mar 25, 1999 11:29 am
18
I am an amature computer user. I searched the web and didn't find out site. Are we under "Duane" the correct spelling or what I see a lot of you use...
Anita Johnson
ajohnson@...
Mar 25, 1999 3:24 pm
19
I would like to compile all the info we have be sharing so we can start sending our findings to professionals that may help us learn more. I can only gather...
coltonscorner@...
Mar 25, 1999 4:04 pm
20
What is your child's sex? ... Please select one of the following: o Male o Female by going to the following Web form: ...
coltonscorner@...
Mar 25, 1999 4:08 pm
21
How many eyes are affected by Duanes? ... Please select one of the following: o Right o Left o Both by going to the following Web form: ...
coltonscorner@...
Mar 25, 1999 4:10 pm
22
What other issues apply to your child? Check all that apply. ... Please select one or more of the following: o Gross motor delay o Fine motor delay o Speech...
coltonscorner@...
Mar 25, 1999 4:14 pm
23
Hello to the group, Thanks to all of *you* for sharing and relating common experiences. The communication and support is a real blessing for our family. It...
K. J. Chruscielski
kcmail@...
Mar 25, 1999 4:19 pm
24
How old was your child fully potty trained? ... Please select one of the following: o 1-2 yrs. o 2-3 yrs. o 3-4 yrs. o 4-5 yrs. o 5-6 yrs. o 6-7 yrs. o 7-8...
coltonscorner@...
Mar 25, 1999 4:19 pm
25
Department of Ophthalmology, Affiliated Tong Ren Hospital, Capital Medical University, Beijing, China. OBJECTIVE: To summarize the clinical features of 201...
K. J. Chruscielski
kcmail@...
Mar 25, 1999 4:19 pm
26
Is your child on any medication? ... Please select one of the following: o Yes o No by going to the following Web form: ...
coltonscorner@...
Mar 25, 1999 4:25 pm
27
Does your child have any of the following other issues? ... Please select one or more of the following: o Excessive Appetite o Poor Appetite o Low percentile...
coltonscorner@...
Mar 25, 1999 4:30 pm
28
A Focused Study of Certain Genetic Diseases: Studies are underway to learn more about certain genetic (neuromuscular and non-neuromuscular) diseases. Blood...
K. J. Chruscielski
kcmail@...
Mar 25, 1999 4:53 pm
29
NORD, Do you have the correct phone #s for this assoc.? The published numbers in your literature (for 224 Duane's syndrome) are not correct. The ...
K. J. Chruscielski
kcmail@...
Mar 25, 1999 5:04 pm
30
Does your child have any additional diagnoses? ... Please select one or more of the following: o ADHD, ADD o Autism o PPD o Growth Hormone Deficiency o Adrenal...
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