Great news about the surgery! May I ask how old you are? I'm 40 this year, and have been very reluctant to try the surgery, but after about 7 months with...
14208
danfc123
Jun 22, 2012 4:03 pm
... Purpose To evaluate the long-term effectiveness of improved ocular alignment using a suture/T-plate anchoring platform system. Design Retrospective,...
14209
JOHN DORANS
john_dorans...
Jun 22, 2012 4:21 pm
Hi, Going back to point made earlier, those of us with Duane's do not have a problem with the muscle as such. It is that the nerve which transmits the signal...
14210
blessedmom7
Jun 22, 2012 4:53 pm
This is also my understanding of duane syndrome also,John.I'm not sure why this keeps appearing on this list as duanes is not a muscle issue....
14211
danfc123
Jun 22, 2012 8:39 pm
I am trying to help you. I can only speak about Duanes type 1. The lateral rectus does not work. Yes I know there is no nerve signal! If you reread the message...
14212
JOHN DORANS
john_dorans...
Jun 23, 2012 12:07 am
Hi, I apologise. I didn't mean to sound ungrateful for the information. I was just trying to understand how this prosthetic muscle could rotate the eye in...
14213
danfc123
Jun 23, 2012 3:56 am
Hi, As far as I understand it and I don't know all the details. There has already been used a titanium plate or something similar which seems to provide...
We are developing other products that can be used to improve the appearance and function of patients' eyes. Prototypes available: 1.Eye Muscle Prosthesis -...
14216
blessedmom7
Jul 4, 2012 3:45 pm
Next time I see our pediatric opthamologist I am going to ask how these types of devices would specifically be of help to duane syndrome.By chance are there...
14217
danfc123
Jul 4, 2012 10:40 pm
Cool, if they say anything interesting can you post it? I'm not getting carried away, i'm sure eye muscles are quite complex surrounded by pulleys and things...
14218
Challis
cnc_cat
Jul 17, 2012 4:01 am
So I have Duane syndrome and had the surgery where they cut the muscle for more movement back when I was 2, but I am wondering does anyone know if Duane...
14219
Christine Otam
whomeceo22
Jul 17, 2012 1:08 pm
As I understand it, Duanes should not get in the way of a Lasik procedure. I'm not a physician, but Duanes has to do with a lack of nerve endings and...
14220
Candi Forbes
auburnaxo93
Jul 17, 2012 1:14 pm
That is my understanding as well. Candi...
14221
Matthew Barstad
matthewbarstad
Jul 17, 2012 2:40 pm
I'm 51 yrs old and have Duane's type 2. Had Lasik in 1997. Have not had any problems. Will likely do it again, as my eyesight has deteriorated due to aging. ...
14222
Mike Antista
johnryan123
Jul 17, 2012 5:59 pm
Good to know. I have duanes and I'm 40,my original dr was stein then abrahams out of UCLA. Last surgery was in 93 to center eye before plastics on my eye lid....
14223
Candi Forbes
auburnaxo93
Jul 17, 2012 6:06 pm
I think anyone who has ever been around Duane's checks the eyes quickly. I have checked my nieces and nephews the first time I held them too. And I think...
14224
Jenny Kinney
jmkinney777
Jul 17, 2012 7:29 pm
Hello  I have a 7 year old girl with duanes we were told that she didnt have any other health issues and then she had to get 8 baby teeth pulled because they...
14225
Mike Antista
johnryan123
Jul 17, 2012 9:00 pm
Hi jenny I went to Stein and Abrahams once a year At UCLA. Then regular doc, our reg doc did not do much because where we were going. I never had any other...
14226
Candice Forbes
auburnaxo93
Jul 17, 2012 10:38 pm
Jenny, My son is 9. We see our pediatrician once a year unless he is sick. We have been seeing opthamologist every other year for maintenance until he needed...
14227
Clara de Saint Albin
claradesaint...
Jul 18, 2012 7:20 am
Hi Jenny, our daughter is 6 and she goes to the pediatrician, ear doctor and eye doctor once a year. She indeed suffers from hearing loss as one of her ears is...
14228
Kelly Trout
kellytrout...
Jul 18, 2012 2:05 pm
Hi All, I noticed the discussion about hearing loss and also about problems with teeth. How common are these with Duane's? I ask because hearing loss - though...
14229
Lindsay Feldman
camarillalinz
Jul 18, 2012 2:47 pm
I have Duane's and don't have any other health issues. But my father and aunt both have severe hearing loss - aunt is deaf in one ear, and dad was almost...
14230
calanthaa
Jul 19, 2012 2:03 pm
Kelly, You can find excellent information about genetic research regarding Duane Syndrome at the website of the Engle Lab at Children's Hospital in Boston. ...
14231
calanthaa
Jul 19, 2012 2:28 pm
I forgot to say... SALL4 has been identified as the causative gene for Duane syndrome with radial ray anomalies (DRRS)-Okihiro syndrome -- which is the...
Hi everyone! My 9 month-old daughter was just diagnosed with DS yesterday. I don't quite know what to make of it. I believe she has Type II, Subgroup C (at...
14234
Christoph J. Gartmann
riromamei
Aug 3, 2012 7:29 am
Hallo, vom 27.07.12 bis 20.08.12 bin ich nicht im Buero und habe wenig Moeglichkeiten, meine E-Mail zu lesen. In dringenden Faellen wenden Sie sich an Wolfgang...
14235
Candi Forbes
auburnaxo93
Aug 3, 2012 1:33 pm
Every parent that posts has sat in your seat. And that list of possible other problems is bothersome. But here is how I handled it....I printed it off. Took...
14236
Candi Forbes
auburnaxo93
Aug 3, 2012 1:37 pm
One more thing..Many opthamologist, pediatricians, and doctors in general do not much about Duane's. It is rare. Hence why I said a knowledgable doctor is...
