Two years ago, when my son was 11, I was told by my sons specialist that he would not be allowed to drive and was asked to sign a legal document. Being in...
... Do you know what kind of document this was? Do you have a copy? ... As this is some legal issue, you will need a lawyer. As you are in Canada you will need...
What province are you in? The legal requirements for driving are specific to each province. I agree with others that in order to get help with this you need to...
I haven't visited them yet, but I have spoken with Carolina who works directly with Dr. Engle in the research portion of Duanes and they have been so friendly...
Hi My son is 13.5 months and was diagnosed with Duane's Type I in his left eye about 5 months ago. I was wondering whether Duane's could make him slower to...
I am a 32 year old woman who has Duanes syndrome .i used to hate going to school as I would be at the hands of bullies who would taunt me with names like...
Oooops! I sent the other post too soon. Your definitely not alone. There are many of us on here that are adults with DS. Some of us are even now Facebook...
Hi, Nona. I noticed that no-one has answered you yet, so I just wanted to say welcome to the group. I'm not a parent, and I don't feel qualified to say too...
Nona, In my experience, yes, it can slow the crawling/walking. My son, now 10 yrs old was diagnosed with severly crossed eyes - they were stuck looking inward....
Hi My Daughter is just 1. She was diagnosed a month ago with Duanes and is now waiting for an op to straighten both eyes as they both point inwards. I have...
Hi Nona! Yikes! My previous reply got eaten by the internet. I wouldn't worry too much if you haven't noticed any other significant delays or regression in...
I was wondering this same thing and browsing online when I found this group just now. I have DS and other than a head turn I don't have any real issues... but...
Hello everyone! Does anyone have experience of these two syndromes combined? We have a 6 yr old with both syndromes and really need to get some answers about...
Hello, and welcome! What effects does your son have from the Okihiro's? Hand/arm issues, hearing problems, etc.? If you're in the US, does he have an IEP? Are...
My name is Ryan and I am 34 years old, I have DS with upshoots on both eyes, although it is very mild and has never caused a problem with my vision. My 14 year...
Ryan: My daughter who is now 12 has bilateral Duanes as well. At the age of 1yr, she had a "bilateral rectus recession" which aligned her eyes in the straight...
Hi, my 10 month old son was just diagnosed with DS he has it in his left eye only. So far my son has not had any delay in motor development at all and it...
Would love to hear from anyone whose child has undergone the surgery to align their vision.My son who is 6 and with a 25 degree head turn is about to have...
Good morning. Thought I would just share my own personal experience. I WISH I would have had the surgery as a child, but either they didn't know about the...
I'm an adult that's had several surgeries and am also a mom and understand your worries. When i was a child, understanding of duanes wasn't great so my first...
I have an eight year old boy that had surgery with a 30 degree head turn at age 2 1/2 and 3. It is awful to make the decision! However, he is so much better...
Hi, I have lived my entire life (50 years!) with Duane's syndrome and a head turn similar to your son's. Â I have lived a perfectly normal--no, actually a...
I'm glad to hear another perspective; but I do want to clear something up. There really isn't much adjusting after after surgery and because it's done so much...
I had 3 surgeries growing up, the last one when I was 12. I never had any trouble with double vision or any problems after the surgeries. The only problem I...
I recently turned 36 and I'm dealing with upper and middle back problems that I THINK are related to my head-turn. I'm currently searching in the philadelphia...
It must hit us in our thirties. That is when I sought out help. I had surgery at Wills Eye back in the mid-eighties. I was having back and neck problems...
I had my first surgery at Wills Eye in Philly back in 1975, and my second in 1979 at age 15. The Dr back then was Robson D. Harley, he's long since retired,...
