<W/o the head turn or tilt, what did the surgeries to her eyes exactly do?> Yes, Terri I am interested in the answer to this also. In India's case her...
1358
WTrowbr262@...
Mar 1, 2000 8:19 pm
Cindi, The surgery for Chelsey's eyes helped to align them more central. The inner eye muscle was snipped to allow less tension pulling inward. At least this...
1359
LLane73342@...
Mar 2, 2000 1:01 am
In a message dated 2/29/00 10:23:03 PM Mountain Standard Time, Musick@... writes: << The way I understood it from her first PO visit was that this was...
1360
Todd & Kris White
whitelex@...
Mar 2, 2000 5:37 pm
Debbie, I totally agree with what you said about sending more to the whole list instead of directly to someone specific. I'm not convinced that's what's ...
1361
kcmail@...
Mar 2, 2000 8:18 pm
According to our "third opinion" PO, *most* children are farsighted and this works in favor of Duanes patients whose eyes turn in. Glasses can help the ...
1362
John Musick
Musick@...
Mar 2, 2000 9:35 pm
Thanks to everyone for their input on crossed eyes and glasses. It makes me feel a lot more comfortable that her eyes shouldn't be like this for forever! I,...
1363
Deborah Thomson
oakleafgoldens@...
Mar 2, 2000 10:05 pm
thanks for the answer. i hope that he feels better. when you said they come to the house, who comes? debbie ... ...
1364
Todd & Kris White
whitelex@...
Mar 2, 2000 11:49 pm
Hi Debbie, Because Aaron is under 3, and is in the First Steps program here in Kentucky, the therapists come here to the house for his sessions. Right now he...
1365
kayash2
kayash2@...
Mar 3, 2000 1:37 am
Debbie, We spoke several weeks back about my daughter.She has DS type 3.I told you I would let you know how her second surgery went,well I am happy to say ...
1366
RPSJS@...
Mar 3, 2000 1:48 am
HI KRISTI...CAN YOU TELL ME HOW HOLD YOUR DAUGHTER IS THAT HAD SURGERY? WHEN WAS HER FIRST SURGERY? THANKS...I HAVE A 4 YR OLD SON WHO THE PO SAYS NEEDS ...
1367
kayash2
kayash2@...
Mar 3, 2000 4:14 pm
Pam My daughter is 5,she had her first surgery when she was 4.That one was to align her eyes horizontaly.The second one was to align her eyes verticaly.I am...
1368
Paul & Julie Andrews
paul@...
Mar 3, 2000 7:59 pm
Kristie, Great news! All the best Julie Andrews (India 2 yrs DRS Type 1 left eye) (Eden 10 months)...
1369
Deborah Thomson
oakleafgoldens@...
Mar 3, 2000 9:43 pm
that's great that things went well. i have a question to ask, my granddaughter it seems on two occasions has been able to pull the eye back inot the correct...
1370
John Musick
Musick@...
Mar 4, 2000 2:43 am
... From: Paul & Julie Andrews [mailto:paul@...] Sent: Friday, March 03, 2000 2:34 AM To: duanes@egroups.com Subject: [duane's] Re: recent...
1371
kayash2
kayash2@...
Mar 5, 2000 12:03 am
Debbie My daughter used to do this as well,I just thought this was normal.She does not have the retraction or the upshoot since she had surgery though.Well I ...
1372
Deborah Thomson
oakleafgoldens@...
Mar 5, 2000 10:18 pm
but i thought that with duanes 3 you would not be able to do this or am i wrong. at what age did your daughter have surgery, was it to correct the retraction...
1373
kayash2
kayash2@...
Mar 6, 2000 2:00 am
Debbie I do not know if i can correctly answer this question.I know that my daughter did that too.She had surgery when she was 4 and when she was 5.This was to...
1374
Deborah Thomson
oakleafgoldens@...
Mar 6, 2000 10:10 pm
caitlin did start as type 3. it would be of great help and give us a little knowledge if you could tell me the name of the surgery she had. was it reversible...
1375
DTTomTom88@...
Mar 11, 2000 2:19 pm
I am the mother of three girls. My youngest one, katie was diagnosed with Duane's syndrome at 11 months. My other two girls (17 and 9) have no eye problems...
1376
LoTeach99@...
Mar 11, 2000 3:03 pm
Hi Donna, Your message is very encouraging. My daughter was diagnosed at 12 mo. with mild Duane's (she is 14 months now). Our other two daughters have no eye...
1377
Bhettle@...
Mar 11, 2000 5:28 pm
Welcome Donna, Thanks for sharing your experiences with Katie - it does sound like she is doing very well. You had her examined at a very good hospital and I...
1378
Deborah Thomson
oakleafgoldens@...
Mar 11, 2000 10:02 pm
my granddaughter has duanes type 3. she has retraction and upshoot , a slight head turn. she will be 2 this month but does not have any of the other problems...
1379
Rivero Family
veggie@...
Mar 11, 2000 10:11 pm
Donna, Your daughter's Duane's condition sounds very much like mine. I didn't notice a head turn until my thirties, and even now, it's very slight. When I was...
1380
kelly glinski
glnsk@...
Mar 12, 2000 3:42 pm
My 18 month old son as been diagnosed with duane's syndrome type I. I was a little relieved to find out he won't suffer with any loss of his sight. I was...
1381
DTTomTom88@...
Mar 12, 2000 5:36 pm
Our daugher, age 6, was diagnosed at 11 months with Duane's Type 1. She has no other apparent disabilities that can be attributed to Duane's. She is in 1st...
1382
kayash2
kayash2@...
Mar 12, 2000 9:06 pm
Kelly I have two daughters with DS.My oldest is 5 and she has type 3,she does suffer from loss of vision.We were told when she was little that this would not...
1383
Todd & Kris White
whitelex@...
Mar 12, 2000 11:33 pm
Kelly, You asked about another disability with type 1. Our son, Aaron, has type one in his right eye, and also has Joubert Syndrome - a very rare genetic ...
1384
Tracy Pratt
tracyp@...
Mar 14, 2000 7:01 pm
I personally am not afflicted by Duane's Syndrome. However, my daugher is. She will be 2 next month and I have seen specialist after specialist trying to...
1385
Tracy Pratt
tracyp@...
Mar 14, 2000 7:18 pm
I don't think I was detailed enough in my first e-mail. My daughter was diagnosed at age 6 months with DS type 1. My PO was very short with me although he is...
1386
Amy Sholders
amy.sholders@...
Mar 14, 2000 7:26 pm
Never say never, Tracy! It's probably more a case of "not being able to do anything right now". Duane's is a progressive syndrome and many of the...
