I apoligize to anyone like me...but truly you parents out there that find your child repulsive cause his eyes look like mine...well screw ya, there is no hope...
all in all I was negative and I apoligize...but this is my point if you guys were not negative about your children..I woulda been just fine but cause you were...
I apoligize to anyone like me...but truly you parents out there that find your child repulsive cause his eyes look like mine...well screw ya, there is no hope...
I apoligize to anyone like me...but truly you parents out there that find your child repulsive cause his eyes look like mine...well screw ya, there is no hope...
Hi Richard, I think we all understand what you are saying, you just tend to say it in an abrasive way that upsets people. I can't speak for everyone in the...
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anitamjohnson@...
Oct 14, 2010 5:22 pm
Thank you, Jess, for saying so sweetly what needed to be said. I think Rickard's comments came from pain and answering him in an angry way doesn't help that...
thanks jessica, and sorry agien, nobody has truly said they are repulsed by their children on here, but they still constintly act like they need a cure...ad...
The main reason I joined this group was to look for ideas and support for me to help my son. His case is mild and we have no intention of “fixing” his eye....
I know what you mean Richard, it hurts to think that someone wants to “fix” you. Even if some of us might word it like that, it’s definitely not what we...
Thanks Anita! I agree, no matter what kind of differences our kids and grandkids have, they are perfect just the way they are. We only want what is best for...
I also agree with what others have said too. My son, step son, step daughter, broth in law and husband all have Duanes. Their appearance has never bothered...
I can relate very well with your son. I have had several surgeries to straighten my eye so that I wouldn't have to deal with the teasing. Tell your son that ...
I think Richard homed in on the one question new people always ask when they join this group: is there a cure for Duanes? I don't think its asked out of malice...
I have had this condition since I was born 70 years ago and had surgery for it, which probably helped to some degree. However, I can see that my left Duane's...
Thank you very much, and sorry agien, I guess I had a relaspe of school :/ well it won't happen agien, and all I can say is besides that one incident I truly...
I agree, and just so everyone knows I am a 21 year old I am not in the age range for children, once agien growing up with my eye I learned very younge not to...
I believe the more and more we have people that get made fun of and that have "birth defects" I think the more and more people will relize they must be...
lol, I actually said the opposite, but oh well :). ... From: Cynthia <troyssis@...> Subject: Re: [duane's] To Richard To: duanes@yahoogroups.com Date:...
One thing that can be confusing about Duane's is that sometimes when people learn of Duane's they assume that every case in the world is similar to the one...
Barbara that was so beautifully said. I am thankful too that we are able to move on from this particular conversation and continue to offer and receive support...
Hi all - we live in England and have just found this group. I have a question which I hope someone will give us some info. My granddaughter is 6 years old. She...
HI Diana Always good see get a new UK member in this group, our health system is so different from other countries is good to share experiences. I can't...
... I had this type of an operation as a small child. Later it turned out that it was a mistake. They considered my case not as Duanes but a as "normal" ...
My daughter had a MMR on her left eye which was minimally successful - in the future, 2 specialists (highly regarded specialists from UCLA and Hopkins) have...
Hi I too live in England. In the 1940's I had three operations for my Duanes (which I was only told the diagnosis of recently, and that it is specifically Type...
I also meant to say in my other e-mail that I too am deaf in my left ear, and that the Duanes eye is my left. Pat ... From: Christoph J. Gartmann To:...
Hi We also live in England. Who is your grand daughters surgeon? Or which hospital is she under? My son had two unsuccessful surgeries in the right eye. (he...
Thank you everyone for your input. My grandaughter does indeed attend Moorfields Hospital where we have been very happy with the treatment so far. As far as...
