I was told I have type 2 Duanes. I only found out relatively recently. Pat ... From: vicki To: duanes@yahoogroups.com Sent: Friday, January 01, 2010 7:00 AM ...
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hothotlad2003
Jan 3, 2010 9:27 pm
So basically concerning lateral movement there is no point me even going to see a eye doctor?...
13118
Christoph J. Gartmann
riromamei
Jan 3, 2010 10:38 pm
On Sun, 03 Jan 2010 21:27:00 -0000 "hothotlad2003" ... You could ask for VRT but - there are not many doctors doing it and even less having experience with it ...
13119
Liane Herbst
lfran84
Jan 3, 2010 11:20 pm
Actually, my son gained around 15 degrees of lateral movement and I know a couple of children gained almost full lateral movement. But it is not as likely for...
13120
hothotlad2003
Jan 6, 2010 1:21 pm
Yes i have also heard it can help in some adults, checking some of the pictures here i can see it has helped some adults. My right eye is really strong and i...
13121
asmaio
Jan 7, 2010 8:08 pm
Hello Everybody, My daughter Julia was diagnosed two months ago at 8 months with Duane's III. I've been reading since then, and had a few questions regarding...
13122
jbabek@...
kayandannsmom
Jan 7, 2010 8:54 pm
Looking back at all my baby pics My head was always tilted or turned. I think the tilt is all related to Duanes. As for the head control I can't say. It only...
13123
asmaio
Jan 7, 2010 10:28 pm
She's definitely less wobbly when her head is turned to the left. It's when she tries to go center that it starts to bob forward and back. But she may also...
13124
tbrown9163@...
tbrown91632003
Jan 8, 2010 12:55 am
I'm 52 with Duane's type I in the left eye. Early on (I say early as through early adulthood when Duane's was a mystery) I would always have the slight head...
13125
asmaio
Jan 8, 2010 2:43 am
Thanks. I don't expect the head wobble to be permanent throughout life, but was thinking that the fact that she is compensating by tilting/turning is making it...
13126
tbrown9163@...
tbrown91632003
Jan 8, 2010 12:34 pm
I understand. One thing that I could add however is that despite my head turn, I'm ambidextrous and never really favored my right or left side for doing...
13127
Liane Herbst
lfran84
Jan 8, 2010 12:48 pm
Hi Amy, and welcome. I am an adult with Duane's, and I totally ignore my left side. I *always* sit with colleagues, friends, and worksheets to my right. I...
13128
Liane Herbst
lfran84
Jan 8, 2010 12:51 pm
Thomas -- As I got older, I also favored my Duane's eye for reading and detail work. It retained much better close vision as I aged. Because this was...
13129
Rebecca Dagenais
rebeccadagen...
Jan 8, 2010 7:22 pm
Amy -  I remember that my daughter, Corinne, always seemed to "favor" looking to the left, which I had noticed in the early months. What I now believe was...
13130
Rebecca Dagenais
rebeccadagen...
Jan 8, 2010 7:28 pm
He is still out on medical leave, but I was told that he will be back in March (but that keeps getting pushed back from Jan, then Feb, now March). I was able...
13131
Rebecca Dagenais
rebeccadagen...
Jan 8, 2010 7:30 pm
Try calling the office number, which is 310-825-2872. ... From: Rebecca Dagenais <rebeccadagenais@...> Subject: Re: [duane's] Dr.R To:...
13132
Candice Forbes
auburnaxo93
Jan 8, 2010 7:45 pm
Grace seems to be a little scattered from time to time, but everything seems to work out just fine in the end. I know several people have posted about her in...
13133
Jennifer Babek
kayandannsmom
Jan 8, 2010 8:58 pm
I agree. I had problems with Grace (dates being mixed up etc.) and was really on edge when I went for my surgery. However, everything turned out great. ...
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rey.arthur@...
rey.arthur...
Jan 10, 2010 4:50 am
Hi Im from Brazil and I've been recently diagnosed with Duane's Syndrome , but my doctor said that surgery is not an option for me . I have normal head...
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rey.arthur@...
rey.arthur...
Jan 10, 2010 4:52 am
... Sorry for the grammatical errors , and thanks very much !...
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Jennifer Babek
kayandannsmom
Jan 11, 2010 1:35 am
My palpebral fissures are also different. I think this is becaus the muscles in my Duanes eye is weaker than my other eye.  From what I understand the...
13137
Rebecca Dagenais
rebeccadagen...
Jan 11, 2010 2:59 pm
Thank you Jennifer and Candi. This makes me feel better. You want to feel settled when your one-year old is going to have surgery. ... From: Jennifer...
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Candice Forbes
auburnaxo93
Jan 11, 2010 3:13 pm
Understand completely, mine was two when I headed out. Good luck. Candi...
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swiminthey
Jan 13, 2010 7:05 pm
Hi all, My son had surgery when he was 3 years old, and is now going to turn 7. I had used Dr. hunter in Boston (he is AMAZING), but he is in boston and we are...
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colbyolson
Jan 13, 2010 7:39 pm
Hello: Did your son have VRT with Dr. Hunter. My daughter was scheduled with Dr. R but he is out indefinately and I had heard of Dr. hunter before(Do you know...
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Christoph J. Gartmann
riromamei
Jan 13, 2010 9:42 pm
... I had MRR surgery in early childhood, followed by patching. ... No, but patching stopped at the age of 5. Thus, with your son being 7 the doctors might be...
13143
swiminthey
Jan 14, 2010 3:39 am
Hi, Dr Hunter was truly amazing. My sons eye looks GREAT!. He comes highly recommended. My son had a very complicated case. I can find out the details, but he...
13144
lawrence_mackenzie
lawrence_mac...
Jan 19, 2010 8:34 am
Hi everyone. I'm the father of a three year old boy (Toby) who has duanes. He was diagnosed when he was one. My wife and I were quite lost once we found out,...
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Don & Sue Ware
warehousesue
Jan 19, 2010 9:44 am
Hi Lawrence, I am not aware of surgeons who are familiar with VRT surgery in NZ but there is a very reputable and experienced Paediatric Ophthalmic surgeon in...
13146
lawrence_mackenzie
lawrence_mac...
Jan 21, 2010 9:38 am
Thanks for that Sue. We've got relations in Brisbane...so could be worthwhile if I can't find someone here....
