Welcome. Such beautiful babies you have. Im a 35 year old with Duanes in my left eye. I've had 4 surgeries with my last and only successful surgery in July of...
Hi. Welcome to the group. It is a wonderful source of information. Take a look at the links, files and archives for past posts, and feel free to ask any...
Hello everyone, My wife, Ann, and I have 3 daughters. 3 yr. old Kate, 7 mo. old Mya and 7 mo. old Aubrey. Mya and Aubrey were born at 34w5d back in April....
My son has DS Type 1 in his right eye and sometimes when he is tired it seems to turn in toward his nose when looking straight ahead. Otherwise, it is pretty...
Hi - My daughter Amelia has type 1 in her left eye and did not crawl until 15 months and walk until around 20 months. She was consistently late in all her...
Hi Carrie - You've gotten some good ideas from the group, and I think your suggestion for your son to talk about it with his close friends is excellent. Just...
Does anyone feel that either their own or their child's eyes sometimes look straight when looking straight ahead and other times don't? My daughter seems to...
Thanks Clara - your comments are much appreciated. Pat ... From: claradesaintalbin@... To: duanes@yahoogroups.com Sent: Friday, November 13, 2009 10:40 AM ...
Hi Clara, I am the mother of a 15 month old son with Type 1 in his left eye and he is not walking on a consistent basis yet. I'm not certain how late your...
Hello Clara I don't know if I walked late as again I cannot ask my Mother about that as she is dead. However, I have not had balance problems or of feeling...
Hello again Pat : I just wanted to know if you ever had balance problems like running into the walls or if you walked late? My daughter has a vestibular...
Hello Pat, Duane's is definitely linked to genetics witch can make it transmittable from a generation to another. However, it is not clear exactly how and to...
Hello everyone Further to my post, I want to say how much I have appreciated this group since I joined it and it makes me feel less of a freak because of my...
Hello every one, be very careful and confirm with a surgeon what exactly you expect from surgery if you wish to take that decision. If your son : - has his...
This is probably why I was teased at school because my Duanes eye looks different! I never realised it at the time but I did get some respite when my Mother...
I'm sorry to hear about your son and the teasing. I am a 17 year old female with Duane's Syndrome. Fortunately, I have not been teased very much, but I was...
Jennifer, Thank you so much for your words of encouragement. I have always made sure that my son is very involved in anything he shows an interest in. He...
Have you considered surgery to 'fix' his eye? Many people who contribrute to this group have had surgery or had surgery for their children. This is a...
anitamjohnson@...
Nov 12, 2009 5:47 pm
13042
First, let me warn you. This is my soapbox subject and I can go on and on about it. I’m a 35 year old with Duane’s and know exactly what your son is going...
Somebody please help!!! My son who is 15 years old now is asking if he can have surgery on his eye. He was diagnosed before he was 2. He has duanes type I in...
I have bilateral hearing loss in the lowest registers --- hasn't interfered with my life at all, but the docs think it is probably related to my bilateral...
Same here. I've always had hearing problems but as an adult I pretty much can't hear on my duanes side. Jamie On Nov 11, 2009, at 8:24 AM, "Pat Smith"...
Yes I have complete absence of hearing in the left ear, on the same side as my Duane's 2 eye but I have lived with it for over 60 years since I was born and it...
wow I am learnig so much about this. I am enjoying hearing and sharing story's with you all. Please feel free to share more infomation. I am new to the whole...
Let me assure you, a premature birth does not cause Duane's. Don't know about the rest, but not Duane's. My understanding is that it happens between 7-9...
my daughter was born premature at 32 weeks, weighing 3 pounds 14 ounce. At 28 weeks I was given a corticosteroid injections to help lyric improve her chance...
I had the same problem with my son. Chad has been treated for a lazy left eye since he was 2, he is now 8. Every year since 2 we have changed and increased...
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