I was sent the article as a PDF by a doctor. Here is the info--you may be able to find it on pubmed, which lists journal articles. If not, I'm happyt o send...
Hi Debbie The Dr that has only saw her twice and has made her another appointment for six months. We spoke about surgery briefly but dont think she agreed much...
Is there anyone out there that has a rare syndrome along with duane's that causes motor skill difficulties and walking difficulties?? I see the number...
Hello, I think no one has experienced the same thing. This is the reason why no one is able to answer your question. You should turn to your doctor who may...
I am not the best person to reply but not one else seems to be answering your so here goes. Most people in the UK come to the states and see Dr. Rosenbaum...
anitamjohnson@...
Jun 2, 2009 3:06 pm
12727
I have to say many people are still treated in the UK. I would liaise with Moorfields eye hospital and ask if they had any recommendations for surgeons local...
Hi all, Our 2.5 year old is scheduled to be evaluated for eye surgery for his Duane's next week. If Dr R. thinks Adam is a good candidate for surgery, he will...
Do you have a hospital play therapis as they often have age related tips on how to prepare children. for me personally with alex and his numerous surgeries...
Hi Everyone, I would be most grateful if someone could tell me does duanes syndrome get worse as the chiild gets older. My reason for asking is my little one...
It causes temporary paralysis of the muscle in the eye so it cannot tighten! Google duanes and botox there is a bit of info about it Shelley ... From:...
My son had surgery at 2 1/2 and 3yrs with Dr Rosenbaum. He will get a special bear when he goes through the pre anesthesia visit, so expect that. As for what...
I'm not 100% sure if I want my daughter to have operation I fear it could make things worse for her. I really need to find out more information about surgons...
I would take regular eye photos so you can identify changes apart from that chill! Not everyone needs surgery alex is the only one of three affected siblings...
There is someone at UCLA who gives young children a surgical bear (a teddy bear in scrubs and a doctor's mask) and talks them and their parents through the...
hello, i am a 37 year old female with duane's in my left eye - it doesn't move to the left. i have in more recent years been having problems with my right...
Hi.. I'm 51 with a mild Duane's in my left eye also. About 6 mos. ago, I had a chest X-ray due to some pneumonia (which I quickly recovered from) but it was...
My mother has DS and has had back issues. I dont have DS but I have back issues, and my daughter (11 months) has DS (we obviously dont know if she'll develop...
I highly recommend this book "Blueberry Eyes". We read it to our son (age 3) before his surgery and afterwards. (Link to amazon below) Kathy Blueberry Eyes...
Hello, I am a 25-year old with Duane's left eye with a pretty bad head turn. I notice that the whole right side of my back, wrist, and arm hurt on a regular...
Good luck!? I hope it goes well and alleviates all of your symptoms. Best wishes, Sari ... From: h_kornman <h_kornman@...> To: duanes@yahoogroups.com ...
Hi Debbie  It seems as if there are only a few UK members in the group, and a number appear to have had difficulty in finding a suitably knowledgement...
Hello, My son has Dystonia, which will cause the same problems that you seem to be having. He also has Duanes. Dystonia does cause problems with muscle...
clara1909@...
Jun 5, 2009 1:00 am
12747
Hi Carol Thanks for this - I tried it and there is a consultant in my own town hospital! However, I got his name in as the result of selecting Correction of...
Please let me know about your experience. I'm having surgery with Dr. R on June 18th. I'm interested in the results as well as your overall experience and any...
Hello. My baby had VRT with Dr. R last July. She has good results. She has good- but not great- lateral movement. It is a big improvement, though. As far as...
Hi - My daughter Amelia (5) had Duane's syndrome and some back issues. She has Type I Duane's in her left eye and a few hemivertebra (wedge-shaped)vertebrae...
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