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duanes · Duane's Retraction Syndrome
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Messages 12552 - 12581 of 13031   Oldest  |  < Older  |  Newer >  |  Newest
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12552
Just had VRT and having double vision when I look up. Dr Rosenbaum thought this is normal. Has anyone else heard of this?...
q33dr
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Apr 4, 2009
6:01 pm
12553
I found out my 20 month old has duanes on Friday. We were told by the doc. that it is normal for newborns to have eye problems until they learn to work...
randaroo_1985
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Apr 6, 2009
2:28 am
12554
So with all these 3D movies coming out, I feel so bad that my family has to see nen 3D. But I have never tried the polarized lenses where they are the same...
justjump
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Apr 6, 2009
3:33 pm
12555
Im a 35 year old with Duanes. I've taken my children to several of the 3D movies and its confirmed the fact that I can't see in 3D. The glasses help the screen...
Jennifer Babek
kayandannsmom
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Apr 6, 2009
3:57 pm
12556
I'm 35 too! I remember going to 3D movies and just taking naps cause it would give me a headache. That was 20 years ago though, so maybe now I can enjoy the...
justjump
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Apr 6, 2009
4:25 pm
12557
I know I cannot see 3D when I wore those special glasses one with a green lens and one with a red lens and they did not merge as they should! All I could see...
Pat Smith
patsmith211
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Apr 6, 2009
5:03 pm
12558
Thanks for asking the question, I've been wondering the same thing. I last tried a 3d movie at Disney in FL. Some  Michael Jackson thing back in the 80's, It...
Peter McCann
mccann_peter
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Apr 7, 2009
1:15 pm
12559
hi everyone! i'm new to the group i have duane's in my left eye, and i'm 25 years old. living in ontario i have lived my whole life being told that there were...
caitlin.christie
caitlin.chri...
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Apr 8, 2009
3:39 am
12560
I'm 35 years old and have had 3 surgeries. I can defiantly relate to your story and can understand you wanting to improve your condition. I've just scheduled...
Jennifer Babek
kayandannsmom
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Apr 8, 2009
7:31 pm
12561
Glad you joined the group. Typically symptoms do not get worse until aging hits the equation in the 40s. However, my son had a fever convulsion (completely ...
Candice Forbes
auburnaxo93
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Apr 8, 2009
8:07 pm
12562
Hi Caitlin, We saw Dr.budning in mississauga, we waited 2 hours for him to say, can't help you. there is no cure and nothing I can do! We then tried sickkids...
Joanne Gardos
joanneg2000
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Apr 8, 2009
11:23 pm
12563
Also he didn't know what VRT and MMR surgery was... ... From: caitlin.christie To: duanes@yahoogroups.com Sent: Tuesday, April 07, 2009 8:39 PM Subject:...
Joanne Gardos
joanneg2000
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Apr 8, 2009
11:24 pm
12564
Our son had surgery twice with Dr. David Royce Smith (out of Sick Kids and Humber River). His office is on Lawrence at Avenue Road in Toronto. Dr. Kraft at...
Jeff & Anne Graham
annegraham1964
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Apr 9, 2009
2:10 am
12565
... Sounds very familiar too me. So I finally decided to go through two surgeries. Now I wish I would have done these earlier. Regards, Christoph Gartmann...
Christoph J. Gartmann
riromamei
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Apr 9, 2009
11:13 am
12566
Thanks... It is hard to know that there is something wrong with your 'perfect" child and nothing you can do to help them. so far she doesn't have a head turn...
randaroo_1985
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Apr 9, 2009
2:19 pm
12567
I'm sorry Anne but I can't remember it was a female doctor, i think it was dr.Lee. Anyway i didn't get any help at all. Just he has great eye sight and has to...
JOANNE GARDOS
joanneg2000
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Apr 9, 2009
11:39 pm
12568
Hi, I have a 7 year old boy named Tyler. (he will be 8 this month) He has been diagnosed with Duanes. I love our eye doctor, but he doesn't recommend us do...
Rebecca Speights
beccas26
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Apr 10, 2009
3:09 pm
12569
As an adult with Duane's I would recommend a second opinion. There are many advances that even the best of specialists are unaware of. I think the most...
Jennifer
kayandannsmom
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Apr 10, 2009
3:30 pm
12570
I second Jennifer's opinion. Our local doctor also told us to do nothing until my son was 15. However, I cannot tell you the difference in his life since...
Candice Forbes
auburnaxo93
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Apr 10, 2009
4:10 pm
12571
On Fri, 10 Apr 2009 15:09:28 -0000 "Rebecca Speights" <beccas26@...> wrote: [...] ... If your son has a head-turn, then I strongly recommend a second...
Christoph J. Gartmann
riromamei
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Apr 10, 2009
5:37 pm
12572
My baby had VRT surgery with Dr. R last July. She is scheduled for MRR later this month. I am very pleased with her results from the VRT. We,too, had to...
ptmom08@...
ptmom08
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Apr 10, 2009
9:51 pm
12573
Hey thank all of you that responded! Where is Dr. R.? I will e-mail him and send him some pictures to see what he thinks. Thanks again. Rebecca...
Rebecca Speights
beccas26
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Apr 10, 2009
10:09 pm
12574
He is at UCLA at the Jules Stein Institute. It is in Westwood which is part of Los Angeles. And what you are seeing in this group, is that not all doctors give...
Candice Forbes
auburnaxo93
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Apr 10, 2009
10:36 pm
12575
My 2 yr old Kyleigh was diagnosed w/ Duane's last year.She has been going to Walter Reed but they keep telling me to come back in 6 months. I have noticed that...
Becky
autobecca
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Apr 12, 2009
2:17 am
12576
A head turn can mean the child is using both eyes together.  If she is not turning her head, she may have given up using both eyes at the same time.  This is...
anitamjohnson@...
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Apr 12, 2009
2:54 am
12577
Hi all, I just wanted to post a success story for all parents with young kids who've been diagnosed with Duane's and have surgery in their future. My daughter...
sharibel
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Apr 12, 2009
1:59 pm
12578
I would LOVE to know how you got Dr. Rosenbaum to respond to you; I spend weeks and several e-mails last year trying to set up an appointment with him or get a...
shadowmatrx
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Apr 12, 2009
2:06 pm
12579
It depends on what you mean by a "head turn." If she is not turning her head to try to to see in the direction her eye does not move this could, as the other...
shadowmatrx
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Apr 12, 2009
2:12 pm
12580
Did your daughter have VRT surgery? It is some very useful information to file away if he does this surgery. Thanks, Candi...
Candice Forbes
auburnaxo93
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Apr 12, 2009
8:37 pm
12581
hi Joanne, i am so dissapointed for you that you have to travel to Dr. R. tell me is OHIP paying for it there? or is this all out of pocket? i have decided to...
caitlin.christie
caitlin.chri...
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Apr 13, 2009
5:32 am
Messages 12552 - 12581 of 13031   Oldest  |  < Older  |  Newer >  |  Newest
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