Corey, I'm curious to see how you feel about the surgery now. It's been a little bit. Have things gotten better? Are you at midline? Most importantly, are you...
It's slightly off midline and has a tiny vertical deviation which my Doctor said may disappear when the swelling disappears, but I know from what I've read on...
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Hello! I am new to this group. My name is Nicole & my 8 month old son, Luke, was recently diagonosed with Duane's Syndrome Type 1 in his left eye. We live...
I am also new to this board, and my son is also 8 months. My husband noticed my son's left eye at birth, and @ 1 mo we were told by 2 specialist that this was...
Hi My duaghter is nine months with Duanes Syndrome type three. I was exactly the same as you in the beginning and started worrying about all sorts of things...
HI Nicole, I am a healthy 44 years with Duane's type I and rest assure that because I never treated like a "handicap" I live a normal life have my beauty and...
I have a son who is 5 years old and doing wonderfully. He did have an extreme case of Duane's that required correction. He had a fever convulsion (completely...
I wanted to say thank you to everyone who has shared their stories with me. It is just a hard realization to come to that your child isn't perfect to the...
My son is 18mo old and our pediatrician opthamologist said that he will need surgery as this is the only way he can correct his crossing. We do not notice him...
I just wanted to give an update after my daughter Amelia's (she is 5)VRT with Dr. Rosenbaum last week. She had her VRT on Tues and everything went fine. On...
Our son, Tate, is now 17 mos. old and was diagnosed with Duane's type 1 in his left eye at 11 mos. old. He only has a 3-5% head turn, so he does not need...
Hello everyone, My daughter Camille, 3 years old, has Duane's type I on the left eye. The syndrom is associated with a left-ear deafness. Her audiation is...
The following duanes poll is now closed. Here are the final results: POLL QUESTION: Would you say Duane is a handicap? CHOICES AND RESULTS - It is a...
duanes@yahoogroups.com
Mar 13, 2009 1:46 pm
12536
There are always anomalies to a condition. I cannot tell you what is best for your child. My comments were about the 75-90% of cases. And to me it sounds...
This forum has been great for me, I look forward to hearing from different people to gain a little more knowledge for my son. Before I had my son 8 months ago,...
Hello, I am sorry it took so long to respond. My baby, too, has Duane's Type 1 in her left eye. She was diagnosed when she was 4 months old. We live in...
Hi All I've recently been to see my original Dr who diagnosed my daughters Duane's. I hasn't happy with his view of treatment, e.g none as its purely...
Yes, she will have double vision. For a couple of weeks, IF that. Younger children are better at adapting and their double vision leaves quicker than an...
On Wed, 18 Mar 2009 10:05:54 -0000 "debbie_vandrill" ... From what you wrote I got the impression that this Dr. is not very competent. ... This is almost...
I do feel he was incompetent. In our first appointment he told me to take a picture from her right side, therefore no one will notice she is cross eyed, I was...
My boy is now 18mo old and he is walking great. He was crossing his eyes since birth, but that did not affect his walking or any other skills. Eye doctors...
I have copied and pasted below some info (questions to ask the doc. and descriptions of the surgeries) that someone in the Duane's group posted last fall. I...
My son (4 1/2 yrs) had the VRT surgery exactly one month ago today. The results have been very positive. It reduced his head turn from 25-30 degrees to about 5...
Hi Debbie We were told that the biggest risk of eye muscle surgery was under or over correction and the possible need for repeat surgeries. We were warned that...
I would just like to add the comment on one complication following VRT - vertical deviation. I believe it is from repositioning the superior or inferior muscle...
Hi, I have been using my university access to medical journals to research duanes - but don`t understand most of it! I found this group, and am really...
I notice that the pictures seem to make it worse for me. I would have to say that the picture probably isn't worse, but I see myself from a different angle...
Hello group. Has anyone known of any issues with teeth not being formed on the Duane's side? Thnx, Rachele Sent from my Verizon Wireless BlackBerry ... From:...
Hi. I'm 39 and was diagnosed as an infant with Duanes. No real issues till recently. Left eye, no periphereal vision. Extremely near-sighted. Kids always...
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