I am 35 years old woman and have Duane's syndrome, type I. The past few years, I have begun to experience chronic pain in my neck and shoulders as a result of...
I experienced the same thing in my late 30s. Excruciating pain. I was able to address it by getting special glasses made. I had a prism added to my Duane's...
Hi my name is Pat and my son Henry has the same kind of duanes as you he is 6 years old. what do mean when you say look cross eyed, do you mean you see cross...
Hi- I didn't want to look cross-eyed. ... you he is 6 years old. what do mean when you say look cross eyed, do you mean you see cross eyed or you didnt want...
It's hard to find adults to talk to so i can understand what it is lke for my son.I liked what you said about sitting in class, I tell people about his eye's...
My left eye doesn't turn left. I find that I am much more comfortable sitting slightly to the left side of the classroom, movie theater, etc. I always...
Is it better to sit in the middle of the room if possible? **************Plan your next getaway with AOL Travel. Check out Today's Hot 5 Travel Deals! ...
You know, I always prefer to be slightly to the left, with middle as my second choice. It's probably a personal preference. Anyone else want to weigh in? --...
I guess it would depend on which eye does not turn which way. For instance, my left eye does not turn left so the less I have to turn my head left, the better...
I never even knew prism glasses existed! I researched them and I think they can help me. I do wear glasses (the duane's eye has worse vision than my...
First off my daughters eyes didnt really start turning in and up into her head until she was over a yr old. Then as we noticed one starting to look up or off...
Hello . My 13 month old baby girl had VRT with Dr. Rosenbaum 3 months ago (type 1 left eye). I am a physical therapist so what you are saying makes perfect...
Yes, since getting the new lenses, my headturn disappeared and my neck and back pain went away, too. I didn't even realize that I had developed a head turn as...
You may want to go to UCLA to see Dr. Rosenbaum. He is the leading PO in the world with regards to DS. He really helped my baby. UCLA is a good 8 hour trip...
Thanks for the info. Did your son need the MRR after the VRT? How much lateral movement did he gain? Sent from my Verizon Wireless BlackBerry ... From:...
No, he never needed a follow-up MRR. He had VRT in each eye, as he was born with severe bilateral Duane's, where neither eye could hit midline. One eye at...
... This is pretty common for Duanes patients when they get older. To avoid the problem you might consider surgery (VRT & MRR). Have a look at the archives of...
I have never had binocular vision as my Duanes is so pronounced that it is impossible for me to do anything to improve this aspect. I did not realise that I...
As a mom I can understand your concerns. As a 34 yo with Duanes I can say that it has never effected the things that I can do. Your stories about your daughter...
... comfortable sitting slightly to the left side of the classroom, movie theater, etc. I always sit/stand with others to my right. Otherwise, I don't see...
I hope the physical therapy helps. Thanks for your post. Our son tries to pick the best place in a classroom to sit, but he hates to inconvenience anyone and...
Hi, I am 21 yrs old and suffer from Duane's. I have never been porperly treated as a child ven though I was diagnosed around my 1st year. I need ot know if...
Hi everyone. Wow how great is it that I have found a group of people who can relate to me. Albeit on the otherside of the world, its great. I am a 20yr old...
... First of all: Duanes cannot be "fixed". There is currently no cure that fixes the underlying reason for the condition to not be able to move the eye into...
Your vision is really close to mine. Since I didn't patch like I should when I was little they say the damage is permanent as far as sight and movement of my...
I have type II abduction in my right eye..my eyesight is horrible as of last year I had 20/200 in my left eye and 20/400 in my right. I have not had any...
Hi Do you know what type of Duanes you have? Mine is Duanes Type II. Yes I have found this group very supportive too and have learned a lot about the condition...
Hi there, You may find it interesting that there is a Paediatric Ophthalmic Specialist who does surgery for Duanes (both the VRT and MRR ops) and is a lot...
They're "not accepting any new patients". :) ... Specialist who does surgery for Duanes (both the VRT and MRR ops) and is a lot closer to you than the USA. ......
I will pray that you will be guided to get an examination and treatment somewhere as you need some encouragement not to give up nor to be despondent about your...
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