first we were told by an optometrist that ryan had duanes so we went to childrens hospital for a second opinion and was told he had type 3!! he has the rarest...
Hi - I'm a 34 yo mother of two who has type 3 subgroup B (turning out toward the ear) in my left eye. As a disclosure, some of the specialists I've seen argue...
Yo- I'm a 21 yr old guy who has type 1/a (in the left eye- so i turn my head to the left when looking at people in front of me). I know it's not the same exact...
Would you be able to post pictures Mike? I'm a 21 year old guy with Duanes too and would love to compare. ... my head ... the same ... (he may be ... that ... ...
my youngest named hunter has type 2 only 7% of ds have type 2 i would say that is rare first he was diagnosed having browns syndrome (8 months) then said he...
Our son has type 3 also. I was freaked out when he was first diagnosed as well but he's eight now and even though he isn't the greatest athlete he is riding...
Welcome. I have a 12 year old who has type III Duane's too. He had surgery when he was six years old. The surgery was a minor outpatient thing - really no big...
it is said that type 2 only has 7% of people type 3 has 15% therein lyes the rareity is all my son does have problems and no surgery to a baby is minor ... ...
... lyes the rareity is all my son does have problems and no surgery to a baby is minor ... Really the type distinctions just aren't that significant. Most...
Having gone through two surgeries with my son at 2 1/2 and 3 . I agree. It really was fairly minor. The worst was the anesthesia. It made for a rough wakeup...
The type is just what movements are impaired. How great the impairment is really the important thing. I have T2 and my son and brother also have T2. So far it...
Our 16 mo. daughter has been diagnosed with Duane's Syndrome. She was seen by Dr. Rosenbaum who diagnosed her and recommended surgery. We just saw Dr....
Hi, my 3 1/2 yo daughter just had surgery last week. We saw Dr. Isenberg, who shares the office with Dr. Rosenbaum. Dr. I. said that my daughter was not a...
We ran into the same thing with my son. However, I posed the same question to the both. How often do you perform surgery on Duane's cases? The answer from...
Besides being a 24 year old with duanes, who has had surgery 15 years ago to help correct the head turn and the turn has come back, I also have problems with...
Hi, my name is Tina Moser, the doctors for years told me I had bilateral six nerve pulsy and at the age of 36 I found I had Duanes I & II, Wildervanck and...
Hello. What are the symptoms of your WIldervanck and Keippel Feil Syndrome? My baby has Duane's type 1 and I feel like she does not have as much range of...
Hi, if I were you I would have them to do a full x-ray of her vertebre's and her neck. Due to the fact that there could be fused vertebra's in the neck. I...
Hello-she has normal range of motion in her neck so I am not concerned about that. What exactly are your symptoms with your shoulder? Is your Duane's eye your...
-Our son had VRT with Dr. R in May 08. The possibility of providing him with lateral movement weighed strongly in our decision but the most important factor...
I have it in both of my eyes and almost completely deaf in my right ear and have lost a very small amount in my left ear. They said it was rare to have it in...
My opinion would to be to speak with a Genesis's before you make any decision on any procedures because they could be other syndrome's that could be affiliated...
Tahlia had VRT followed 6 months later by MRR some 7 years ago and gained lateral movement, lost her 30 degree head turn and now at age 11yrs 9mths has had no...
I really think you should get a second opinion. I have never heard of anyone going blind from Duane's either. I would do alot of research before you decide on...
I'm blind in my duanes eye (almost completely) and have been since around age 10. From what I understand it was because I refused to patch at a young age. My...
Hi I have Duane's Type 2 in my left eye and also total loss of hearing in my left ear. I can see out of both of my eyes but they do not match up. Therefore I...
... From: Pat Smith To: duanes@yahoogroups.com Sent: Monday, October 20, 2008 3:44 PM Subject: Re: [duane's] Re: Anyone going blind in the duanes eye? Hi I...
How the dr. explained it to me was that basically my right eye was compensating for my duanes eye to the point that my brain forgot that my duanes eye was...
Hi I have Duanes Type 3 in my left eye. I do not "use" my left eye to see, but I am not blind in that eye. My brain only registers the signals from my right...
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