Hi, My name is Kay and my daugher Fiona has been diagnosed with Duane's Retaction Syndrome 1 C. I noticed from birth that there was something wrong with her...
Hi Kay and welcome to the group. I am an Aussie too - from Nth Coast of NSW. The first born of my twin grand daughters has Duane Syndrome and had surgery to...
Just "browsing" so to speak. I was actually looking for an article on Duane Syndrome (it's actually called Duane Syndrome NOT Duane's Syndrome, according to my...
It's nice to hear from someone who has "been there....done that"! Thanks for the encouragment and perspective - both of which we lose sometimes! Karen...
i was told last week my son has duane retraction syndrome in both eyes they never gave me a type just said it was slight in both eyes .he has attended hospital...
Hi Kay, I'm from Melbourne too. I'm a 29 year old with type 1 Duane's syndrome. No one else in my family has it. I actually didn't find out that I had...
You made me laugh...I swear sometimes I want a letter from my doctor to carry with me to show to people when they look at me funny because my 3 yr old has some...
Hi Liesl Thanks for you great post. There is a paediatric ophthalmologist in Brisbane who performs both VRT and MRR for Duane Syndrome to eliminate head turn...
Hi everyone, I'm Jess and I'm 24. I am a Duanes Syndrome adult and finally learning more about what I have. I did have the corrective surgery just a little...
... Yes, this is what happens after MRR surgery after several years. ... I went to Dr. Rosenbaum in LA to have VRT, followed by a hopefully last MRR here in...
Is Duane Sydrome and Brian tumors common? I have a friend who's daughter is 4 years old and has Duane Sydrome and a Brian Tumor. Does anyone know if anyone...
hi i havent heard anything about it im also woorried my 17 year old has bilactual duanes syndrome heart problems and renal problems and hemeplegic migraines...
In all the years I have read the postings on this site, I have never heard of anyone having both conditions. I have been reading this site since it's ...
Anita Johnson
anitamjohnson@...
Sep 6, 2008 10:11 pm
12170
I haven't been here in a long while...mostly because there was so much about children and very little about adults! Thanks for the poll. I would like to...
I had surgery when I was 8 for an injury to the non-duane's eye. After that, any kind of surgery on the duane's eye was out of the question. Major cosmetic...
I suggest you check with your eye specialist. Our son is 11 yo now and was diagnosed at 9 months. We did have to go through tests to rule out tumors. AT that...
On Sun, 07 Sep 2008 00:28:15 -0000 "Kathy Roche" <mathterp64@...> ... I modified the poll accoording to your suggestion. Unfortunately this removed all...
Hi my name is michelle and I just found out that my 6 month old son has duanes and I was wondering exactly what this is and what it means for him in the...
HI My son has duanes 2 and i found out when he was 9 months i was so upset and now he is almost 5 and i can tell we don't even think about it at all he is...
In our experience, our son can do anything. He is 11 yo and he even pitched in his town baseball this summer. Of course there wasn't a whole lot of stealing of...
Hi Liesl, I'm a 21yo in Newcastle, Aus. My eyes had central alignment until I was around 19 and suddenly my left one went inwards. I've been to two paedatric...
hello Tina, Thanks so much this was very helpful,and eased my mind alot. Just yesterday my son stood up for the first time on his own I am so proud of him. I...
I am actually not sure which procedure I had 15 years ago. I want to say it was the MMR because all it did was correct the head turn I had. ... surgery ... ...
Michelle, Many of us have been through the shock of finding out about Duane's with our children. However, the reality is that for most people, it is never a...
Hello all- My baby had VRT in July with Dr. R. Today is her fist birthday! :) Anyway, I do notice about 5-10 degrees of lateral movement, but she still looks...
I would wait the full three months before any triumph. My son looked perfect after VRT surgery as far as looking straight ahead and lateral movement. Then...
Just wanted to inform the group of my daughter's case to date. She is now 4 and a half with no surgery. The last time we saw our PO, he still wanted to...
Hi all. My daughter, 3 1/2, has Duane Syndrome and will be having surgery in October. She is not having the VRT or MRR, just strabismus surgery since her...
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