My daughter's eyes have been getting worse over the last few months. I took her to her eye doc and he is sending us to a specialist because he dosn't think she...
I have Duanes in my right eye. I was a late walker. i didnt walk till aftafter my first operation around 18 months. I am clumsy abit but I can still do...
I just wanted to add that my daughter (DS in left eye diagnosed at age 4 months) did not start walking until last month at 18 months. We took her to physical...
Hello..I am the mother of a 10 month old baby girl who has Duane's Type I--left eye. My baby was also diagnosed with Duane's at 4 months of age. She just had...
I have Duane Type I at both eyes, and my family used to tell me that I started to walk very late (18 months). I still remember some photos of me as a 12/14...
Hi, I am new to this board. We have known that my daughter has Duane's for a few months now. At first they thought Brown's, but now it is definately...
Welcome. Just curious -- which doctor at UCLA are you seeing? Most of us who go to UCLA see Dr. Rosenbaum, who is thought to be one of the world's expert on...
Thanks for responding. I appreciate that. We are seeing Dr. Isenberg. He is the one set to do the surgery. Otherwise, her regular doctor is at Loma...
Gosh, you know, there have been dozens and dozens of people on this board who have travelled all over the county and the world to see Dr. Rosenbaum, as he has...
Well, we took our daughter to the Center for the Partially Sighted as my son, who has cortical vision impairment was seen there. CPS referred us to Dr....
That' amazes me. Dr. R. never mentioned him, and I guess that's true vice versa, as well. And they both work for the same institute. Please, let us know how...
I just got his report today and it says "recess RLR 4mm and LLR 7mm". He explained the surgery to us - but I really don't have specifics. ... From: Liane...
I would guess that he is going to recess the Right Lateral Rectus 4 mm and the Left Lateral Rectus 7 mm. Usually, this type of surgery will align the eyes but...
Thanks for the info. Dr. I is also with Jules Stein Eye Institute. I will call his office tomorrow and ask about VRT as well as contact our own doc....
No, sorry. When you ask about VRT, I would use the full name -- Vertical Rectus Transposition -- just to be clear. I am signing off for the night. I will...
Hello. Gosh, I am going to concur with the previous posts from Liane...I would just at least get a second opinion from Dr. Rosenbaum. Don't feel weird about...
Just for what it is worth....We also used Dr Rosenbaum for VRT followed by MRR on my son, and I too believe he is the expert in Duane's by simple volume of...
I walked late at about 2 years old. Indeed, I was so late that I was referred to a children's hospital. They told my mother it was due to my balance but I'm...
Our son (DS II) walked at about 10 ½ months, but would go about 2 or 3 steps and then fall down. The evening after his surgery at 53 weeks of age, he walked...
My son's eyes crossed rather suddenly as a toddler and he was dxed w/ Strabismus, Duanes, and Amblyopia. Surgery straightened the eyes and everything was...
-I want to thank those of you who have responded. You all gave me some things to think about. I spoke to Dr. Isenberg and also our primary ped. opthal. and...
Hi, just to add to the above. Our 4 year old, bilateral duanes was slow with gross motor movements. Sitting at 9 months, walking, unsteadily at 18 months, very...
Thank you for such a hopeful and encouraging report. You are a brave parent and your son must have your courage and will to survive. This is the most ...
Anita Johnson
anitamjohnson@...
Aug 13, 2008 5:21 pm
12116
Hi Everyone, Just to let you know , my son has duane's 1 and he's 13 months old and walking just fine. ... From: duanes@yahoogroups.com...
I have a 14 month boy with bilateral duanes type 1. He has also suffered from chronic constipation since about 5 weeks. He was on a special formula for a...
Hello, Im 33 with Duanes in my right eye. I was severely constipated till I was 4 years old. Now they say I have Irretable bowel. When I was young I had to...
Hello, My 9 mo. old daughter was just diagnosed with DS II. We are still taking it all in and I am happy to find this group. I will look forward to sharing...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
